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Two page spread? Grim.

The article is behind a paywall but if you sign up for an account you can get two articles free each week. I have attached screenshots of the first half of the article to give a flavour of its content.

I watched it the other day and also thought it was a fantastic documentary and showed the impact of ME so well. It was also great to see such dedicated doctors studying this illness.

Thanks @Jonathan Edwards, v helpful information, especially as I have seen a few online place doubt on the rituxamab trial results because of this change.

Can anyone expand further on this? Does anyone know why the dosing was changed for the Phase 3 of the trial? Many thanks.

The survey said it s asking for opinions, here it says vote. May I ask is it a straight vote or seeking opinions? Many thanks.

The authors of the IOM criteria said they were not intended to be used as research criteria.

Thank you for your reply.

Off topic a little bit, but does anyone know what criteria the US Centers of Excellence for ME/CFS use? Many thanks. Also @Andy, may I ask how similar is this to the proposed 2016 MEGA study that didn’t get funding?

Ramsay in his 1986 book said ME could happen in epidemic and endemic form.

I believe that Strauss also said the Incline Village outbreak on which CFS criteria were based on was hysteria. Edited to add Correction, it was Williams Reeves of the CDC who said to a reporter on a US tv Show in 1996 called Prime Time Live that was reporting on the Incline Village outbreak...

Lilipink has just confirmed to me it was them.

I think when bps proponents have heavily invested in framing ME as something that can be improved by graded exercise it’s more important than ever to leave no room for ambiguity.

Thank you @Trish, health first!

@Trish, may I ask did Action for ME ever revise their toolkit as they said they would last January after temporarily taking it down? When I went on their website today, there is no further information after their update last January saying they would take it down temporarily. It still seems not...

I know the science hasn’t definitively proven an enteroviral virus is the cause but I do think there should be more research studies building on the earlier work by people like Betty Dowsett (and Hyde) who was studying the role of enteroviral infection - she had worked with Ramsay - to rule...

I thought Hyde in his books doesn’t discuss treatment much (confession not read!) as he believes ME is due to enterovirus which he points out there is v little treatment for?

But would that not only include any pathogens they find in the blood? I presume the possible reasons they give for the absence of differential gene expression between ME/CFS patients and controls would be same re viruses. In the paper it says: “Reasons for the absence of differential gene...

“I gave my advice to rise from your bed and walk once the initial illness has passed. I still believe that” Thank you for @NeilH for commenting on here. I too am very sorry for your loss and being unable to go to your sister’s funeral. This illness can take away so much. May I ask are you...

Yes, their smug laughs talking about the ‘elephant in the room’ were hard to listen to. They patronisingly acknowledge patient’s anger but never cease to not ask why patients are angry - their treatments don’t work and worse of all can make us worse.