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The article also has the below paragraph Does anyone know what ‘adequate treatment and medication’ David Systrom may be referring to in the quoted paragraph above? Thanks.

Above is taken from the NYT article. Does anyone know which ‘proper treatment and medications Systrom may be referring to?

Agree the updated NHS page is awful.

What treatments proven to work? There are none yet. Feel he is implying here there are some, not hard to guess what he thinks they are.

Thank you @Samuel

@Samuel, is this BACME quote from the stakeholders comments? Many thanks.

In NICE’s article on the new guidelines posted yesterday Baroness Finlay, vice chair of the NICE ME/CFS guideline committee, is quoted saying ME causes disordered energy metabolism. I think it’s a useful quote but is anyone able to direct me to what evidence in the guidelines evidence review...

Do these work? https://www.nice.org.uk/guidance/ng206/documents/consultation-comments-and-responses-4 https://www.nice.org.uk/guidance/ng206/documents/consultation-comments-and-responses-5

As the NICE guidelines are classed I believe as advisory and not binding, would this weaken citing them in any court case by an individual claiming harm by being prescribed GET?

Of course I agree it’s ludicrous. However, isn’t it possible the Bedford clinic has been able to come up with such rubbish as a graded activity management plan due to the guidelines still suggesting a person with ME can eventually aim to increase activity albeit now with the important caveat in...

May I ask in what way was the intramural study cut short? Did it not look at all it said it would, or it studied less patients than originally planned? Thank you.

Sorry for late response. They didn’t ask about actual medical/psychiatric diagnoses. The study says to measure mental health they measured mental health and wellbeing using ‘the Strengths and Difficulties Questionnaire (SDQ)16 along with the short 7-item version of the Warwick Edinburgh Mental...

I have not watched yet, but Solve ME have done a webinar on long CoVid, a 3 part series apparently. Below is part 2. ETA - apparently it will cover comparisons to ME.

Agree @Leila.

All anecdotal of course but I’m noticing a fair few people on Twitter who have been sharing their experience of suffering long Covid for the last year on there now sharing they have a year on or longer from onset reached remission or back to 90-95% functioning and able to do aerobic exercise...

I know there are studies that say the 2002-2004 SARS outbreak caused ME in some infected. I just would like to note the studies used Fukuda CFS criteria. Some of course could fit ME/CFS Canadian criteria or ME ICC criteria but this is not known as they used Fukuda CFS.

Tiresome and grim article. Spiked-online is British with a libertarian bent. https://www.spiked-online.com/2021/09/17/is-long-covid-a-myth/

Thanks for sharing. Grim. Were these @Amw66 the questionnaires for the ongoing CLoCK study? Thanks

I looked at the CLoCK paper. Paragraphs in Discussion section show in my opinion they are looking to frame LC as having a significant mental health component and treatment should involve psychological therapies. V concerning. Know shouldn’t be surprising seeing who some of the authors are...

Agree with you of course. Absoud could be referring here to the finding people with poorer mental health before sick with long CoVid had a higher risk factor to develop multiple symptoms than those who had one symptom or less? Looking at the study, there is a question on previous mental and...