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Thanks, sorry yes meant CRMC. Why on earth do names have to be kept secret? Not very transparent.

Sorry if a bit off topic but can I ask @phil_in_bristol who are the other CFSAC patient advisory members? Many thanks.

Thanks @Dolphin I realised that when looked at the previous page and makes much more sense!

@Jonathan Edwards, do you mean Ponting when you wrote Parent above? Thank you.

I have now looked at the job details further for both GET therapists posts at CFS clinics in Lancashire and Royal Free. Although I took on board Snowleopard’s observation that the information in the personal specification about being prepared for threat of physical or verbal abuse may be...

Thanks @Snow Leopard, I did wonder if that was a standard sentence in all NHS job applications. Obviously that doesn’t take away from the issue that graded exercise therapists are still used in these ‘fatigue’ clinics which will include ME patients.

Another advert for similar job. This one at the Royal Free Hospital in London. Current job advertisement for a part-time GET specialist physiotherapist at the Royal Free Hospital in London to cover maternity leave-...

@Action for M.E., do you plan to remove the quotes from the BACME publication in your statement and any future literature? Or are you just going to leave it there because quoting according to you doesn’t mean endorsing? This is not clear to many as I am sure you know. With your recent new...

Not at all @Keela Too, really helpful detailed explanation, thank you, and confirmed how I thought it works.

Sorry messed up the previous post, try again. @Mithriel, you wrote, “A lot of the confusion is because aerobic activities are ones that are done after you have reached the anaerobic threshold and are respiring anaerobically within the cell. So aerobics classes are ones where you exercise so...

Thanks for sharing your experience Wonko. Van Ness et al have always said the severely affected are too sick for them to work with. Howver your experience indicates even the anaerobic training principle for people with mild to moderate pwme may not work and risk further deterioration. I am...

I am not an exercise physiotherapist so don’t take my explanation for gospel as I may have got some things wrong, but my basic understanding of the aerobic and anaerobic pathways is both are always in use, just one predominates depending on which type of activity is used. Also the anaerobic...

I believe if people like Davenport and Van Ness talk about reaching the aerobic threshold this is when the pathway switches from predominantly anaerobic to aerobic. The official term is anaerobic threshold so yes confusing if they refer to it as the aerobic threshold. As our aerobic pathway is...

Ha, good analogy and agree!

Thanks Sarah. I have not seen this before. As I just said in a response to Adam your comment above citing a Davenport paper explains further that they hope by strengthening the anaerobic pathway they hope to mitigate some of the negative pem effects. However, as you say I note Davenport et al...

Thanks @adambeyoncelowe. I have now read your added clarification above. I have deleted my last sentence above too as not needed now. I agree with you the phrase ‘careful training’ is open to misinterpretation. It would have helped if Van Ness in that letter had made clear, as he has elsewhere...

@adambeyoncelowe, where has Van Ness said aerobic training can be done eventually? His quote Afme cited from his letter to healthcare providers doesn’t mention aerobic training, just careful training of the anaerobic system. In the letter he says: “management approaches are best achieved...

Sorry I have not read through this thread yet, so others might have made the points I am about to make. Afme might have in yesterday’s statement acknowledged the harm caused by their involvement in PACE - a PR damage limitation exercise in my view, though still welcome - and also made clear they...

I take it you mean the phenomenon may be worth exploring for phobias? Something of course completely separate and different to ME. Once again really appreciate you writing this thread. It’s really important people know the dangers of the CSS model for ME which is being promoted in many quarters.

Thank you for that helpful explanation, it has clarified things further for me.