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  1. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Dr B in one of his presentations says that cervical traction is a dress rehearsal for fusion surgery. I believe will not offer surgery to patients whose symptoms do not immediately improve under cervical traction, because he says if traction does not help, neither will surgery. Furthermore, it...
  2. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    The amateur attempts at diagnosis are just for personal interest only, and also useful for learning a bit more about CCI. Often people will get their MRI imaging, send it away for professional analysis, and while they are waiting for the results, may indulge in amateur speculation about what...
  3. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Here is a screenshot of a Henderson 2018 video which shows the 17 institutions that participated in the 2013 meeting which lead to the consensus statement (a statement which agreed that the CXA, Grabb-Oakes, BAI and translational BAI were the crucial measurements for detecting craniocervical...
  4. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Any individual is free to pursue whatever course they see fit. First of all, as far as I am aware, MEAction are not focusing on CCI; this is something more personal to Jen, and to Jeff. The CCI stuff is not done under the banner of MEAction. Secondly, from the perspective of Jeff and Jen, they...
  5. Hip

    Fatigue: The Silent Symptom of Parkinson’s Disease

    A recent study found evidence of chronic enteroviral infection within the brainstem neurons in Parkinson's. One family member is showing the symptoms of Parkinson's, and I suspect this was caused by the coxsackievirus B4 virus which triggered my ME/CFS, and also infected all my friends and...
  6. Hip

    Everything you always wanted to know about non-cytolytic enterovirus but were too afraid to ask

    I appreciate that, but if you want to observe viruses reactivating, it's best to look at the areas where the viruses are located. Likewise, if you want to observe penguins giving birth, you'll see that in Antartica, but not on the French Riviera. Getting blood samples from ME/CFS blood banks...
  7. Hip

    Everything you always wanted to know about non-cytolytic enterovirus but were too afraid to ask

    Sounds like these researchers are more interested in playing with the latest molecular method viral detection toys, rather than taking the viral infection theory seriously. If they went the extra mile to take tissue samples rather than blood samples, they'd likely find ample evidence of viral...
  8. Hip

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    I could not find any info on how tetrachlorodecaoxide (TCDO) is metabolized in the body, but TCDO is also used as a swimming pool disinfectant, where I read it breaks down into chlorine dioxide, so my guess is this also happens when TCDO is delivered intravenously. So I think TCDO may be like a...
  9. Hip

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    The chlorite-based drug licensed to treat radiation cystitis, diabetic foot ulcers and wound healing is called WF10. WF10 is a 10% solution of the chemical tetrachlorodecaoxide, which looking at its chemical structure I think may be a molecular complex of four chlorite ions. In terms of dosing...
  10. Hip

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    Yet what is in effect Miracle Mineral Solution is also sold as an injectable pharmaceutical drug which is licensed for use in the treatment of radiation cystitis, diabetic foot ulcers, and wound healing (due to its immunomodulatory macrophage activating effects).
  11. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    There are quite a few anecdotal accounts of death from stroke after chiropractic manipulation of the neck. Anyone who has ever been to an osteopath or chiropractor may have experienced them apply these swift sudden moves to "crack" joints. It's when they "crack" the neck joints that this issue...
  12. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I have not seen any mention of the use of prolotherapy for CCI. In this 2019 paper by Henderson, he mentions that CCI surgery is only indicated after conservative measures have failed. These are the conservative measures he lists: Prolotherapy does not appear to be mentioned. As an aside: I...
  13. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    In this 2018 video by Dr Henderson at 7:47, he addresses the question of "When does ligamentous laxity at the craniocervical junction become pathological". He details the metrics used to measure craniocervical instability on MRI scans. There are over 20 metrics available, and in the early days...
  14. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    On the YouTube presentations of Dr Fraser Henderson and Dr Paolo Bolognese (the two leading CCI surgeons in the US), they talk about ligamentous laxity being the cause of the CCI cases they see. From the "student notes" I made from these videos, in this 2012 video at 13:12, Dr Henderson says...
  15. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I don't think the inflammation in chronic coxsackievirus B myocarditis shows up on X-ray. Nevertheless, there are several studies which demonstrate coxsackievirus B myocarditis leads to connective tissue remodeling as a result of increased secretion of matrix metalloproteinases, which degrade...
  16. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    New thread on PR about Grisel Syndrome, a condition involving atlantoaxial subluxation as a result of an inflammatory process of the head and neck, typically an upper respiratory tract infection. This makes me wonder whether the (presumed) inflammation driving the chronic sore throat in ME/CFS...
  17. Hip

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I spent a bit of time looking into the CCI/AAI diagnostic procedure used by the CCI/AAI neurosurgeons, which a patient would have to satisfy before they consider surgery.
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