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There is an MEpedia article about the NIH post-infectious ME/CFS study, and also this NIH article.

With the articles's tantalizing intro phrase of "shedding new light on the nature of consciousness itself", I thought there might be more substance and ideas in the article than there actually is. Nevertheless, I did find the distraction technique interesting, and this may indeed shed some...

I believe patient-doctor relations have changed quite a bit in the last 50 years, with doctors now taking lots of time to explain the various treatment options available to the patient, allowing the patient to decide. As opposed to the traditional approach where the doctor is assumed to know...

The NewScientist magazine of 6 April 2019 contains the following two articles on psychosomatic / somatoform illnesses: It’s time to change our approach to 'psychosomatic' illness Doctors have started making sense of a group of mystery conditions where people experience symptoms, but medical...

In countries with socialized medical systems like the NHS, another issue with giving more power to patients dictate the treatments they want is the cost. Every patient would like the latest (and often very expensive) new drugs or treatments; but in socialized medicine there is a limited amount...

If educated patients who know more about their particular disease than their generalist GPs are to be given more power to dictate what treatments they want, who then takes legal responsibility when a serious adverse event occurs as a result of the treatment? This question will need to be...

Did you take it just before bed? I've seen suggestions that racing thoughts might be related to too much NMDA receptor activation and/or too little GABA receptor activation. The "wired" state of ME/CFS I think may also involve this.

Is what you have "racing thoughts" perhaps? If so anecdotally N-acetyl-cysteine can help.

It would have been different in the past though, as before the Wessely School came on the scene in the late 1980s, I imagine most of the UK's ME/CFS research would have been biomedical.

In this post I used a special PubMed search string to try to identify all the biomedical studies and all the non-biomedical studies (eg psychological studies and softer sciences) ever performed in each major nation, and was thereby able to calculate the percentage of biomedical ME/CFS studies...

MEpedia does tend to go down for a day or so every now and then. The last time this was reported on this forum was a month ago, on this thread.

On the subject of viral reactivation, through Solve ME/CFS funding, Dr Bhupesh Prusty is doing some intriguing research on HHV-6 reactivation, where he has found that: I'd really like to know more about that mechanism which remotely causes changes in mitochondria.

There are four studies which show a higher incidence of major chronic stress in the year before ME/CFS manifested. Wessely School psychiatrists no doubt will hold that as evidence that ME/CFS is a condition caused by your own thoughts. But I suggest that the chronic stress connection to ME/CFS...

The GWI epidemiological studies pointed to organophosphate pesticide and organophosphate nerve agent exposure as the most likely cause; vaccines were considered less likely causes.

It's not actually the specific information on a media platform that determines whether something is a media echo chamber. It is to do with whether there are software mechanisms like the retweet or share buttons on Twitter and Facebook which can create viral spread of material across the...

It could be, though I would like to see more research on this. Dr Charles Shepherd of the ME Associated has a long-standing interest in post-vaccination ME/CFS. Generally though I suspect we would dramatically lower the incidence of ME/CFS if new vaccines were developed that cover the viruses...

Wikipedia says about itself that it is not perfect, and no system is. But by and large Wikipedia works well. One study examined the accuracy of Wikipedia compared to Britannica, and found they were about equal. On Wikipedia medical, where I've very occasionally done some editing, I found it is...

Are you sure you understand what an Internet echo chamber is? These echo chambers are hearsay environments. Wikipedia is the complete opposite of an echo chamber: statements you make on Wikipedia are assessed and checked by your fellow Wikipedia editors for their factual accuracy against...

Myself I don't think this is about access to information. It is more about the fact that some social media platforms can be mindless echo chambers for any old opinions and ideas, such that these ideas propagate without ever being confronted by critical thinking or factual evidence. In fact the...

Three brain post mortem studies on ME/CFS patients showed enterovirus infection in the brain, whereas 8 controls who did not have ME/CFS had no enterovirus in the brain. Now of course the statistical significance is not high; that's due to the difficulty in getting brains to study. But a viral...