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  1. Daisybell

    Open MSc research concerning Chronic Fatigue Syndrome/ME and pregnancy decision making. Being undertaking at Cardiff Metropolitan Uni

    It seems a missed opportunity not to look at why people with ME don’t have children... I’m sure there are lots of people like me who would have loved to have had kids...
  2. Daisybell

    e-coli infection and leaky gut

    My partner had, a few years ago now, a ruptured appendix which the hospital failed to identify (long story so won’t interrupt this thread!). A friend and I suspected that this was the case, and persuaded the GP to give antibiotics - after a 10 day course, he was somewhat better, and I argued...
  3. Daisybell

    Is your "startle reflex” super sensitive?

    Yes - particularly if I’m not feeling good. And then if I do get a fright, it takes a long time for me to feel ok again.. I am also hypersensitive to noise generally now.
  4. Daisybell

    e-coli infection and leaky gut

    Hurray! I hope you recover quickly now. :hug:
  5. Daisybell

    e-coli infection and leaky gut

    Thinking of you @Graham and sending you every good wish... i hope you are doing better....
  6. Daisybell

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I have been wondering if the issue is one of whether or not the problem is temporary... So - if you are measuring pain which is not chronic, as in childbirth, then a subjective measure is fine. But if you are measuring a subjective measure for a long-term illness/syndrome, then its not ok. You...
  7. Daisybell

    Coronavirus - worldwide spread and control

    There seem to be a number of studies suggesting that immunity to Covid-19 may be more common than previously thought... https://www.spectator.co.uk/article/immunity-to-coronavirus-may-be-far-more-widespread-than-thought#
  8. Daisybell

    The biology of coronavirus COVID-19 - including research and treatments

    Here in NZ, there have been three recent positive test results in nurses who have got to the end of self-isolation (14 days) due to possible exposure, and then been tested as a routine precaution before returning to work. So the incubation period seems to be sometimes longer than 14 days...
  9. Daisybell

    YouTube: Doctor at Queens Hospital in the UK advises on potential lifesaving corona virus breathing technique

    Just watching a news item from an ICU - they are turning patients onto their fronts regularly. Apparently that does help with lung function....
  10. Daisybell

    Covid-19 - rationing of medical care

    When I was still working I used to go into a lot of residential facilities for the elderly. Discussion around resuscitation took place when the person moved in, and was reviewed regularly. Staff working in these homes are very used to people dying - the residents usually have multiple health...
  11. Daisybell

    Outcome measurement in functional neurological disorder: a systematic review and recommendations, 2020, Pick et al

    The striking consistency of the results of trials looking into this issue further encourages the researchers that they are definitely right. They work towards proposing that most, if not all, illness fits neatly into their model of perpetuation.
  12. Daisybell

    News from Aotearoa/New Zealand and the Pacific Islands

    This worries me....
  13. Daisybell

    Pathogens associated with triggering ME/CFS - discussion thread

    Parvovirus was my trigger. I think there are a couple of studies linking the two....
  14. Daisybell

    Assessment and management of recurrent abdominal pain in the emergency department, 2019, Daniels et al

    My partner was sent home with a diagnosis of constipation when in fact he had a hole in his appendix.... They only discovered that about a year later. Luckily the GP prescribed antibiotics when I made a big fuss, and then prescribed a second course when I said he was improving but not better...
  15. Daisybell

    Science minded people--help me engineer a simple structure to stay warm?

    I bought a cat bed that is ‘self-heating’ - when I look at it, it just has a reflective layer like tinfoil in the middle. I think those reflective blankets that rescuers wrap around people when they find them lost are probably really good for keeping the heat in. I was thinking perhaps you need...
  16. Daisybell

    Science minded people--help me engineer a simple structure to stay warm?

    Can you have something underneath you that reflects the heat back at you? I think it’s important to not being lying on a cold surface. What are the options in your nearest camping/outdoors store?
  17. Daisybell

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    @JenB can you please confirm for me that you mean dysphasia as a symptom of CCI - and not dysarthria? That doesn’t make any sense to me. Brainstem compression leads to slurred speech and swallowing problems due to the effect on the cranial nerves. Aphasia/dysphasia results from damage to the...
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