Search results

Interesting list @rvallee - there is nothing on that list that I can do indefinitely or without payback, and I am mild. Some things I cant do at all.

Would there be benefit in putting in a few cognitive questions or is this intended to be purely physical? Reading a book/working at a task on the computer/having a conversation for 10 mins/30 mins/one hour - these are all things I struggle more with now. On the purely physical questions, my...

Absolutely! I’m hopeless now at switching my attention - I find it very difficult to do, and it wipes me out. I can only deal with one input source at a time. And having to process rapid speech - just can’t do it.

I do think it is possible that mild patients averaged around 8000 steps a day. I do that most days. Concentrating and cognitive tasks, noise and movement are what really wipe me out. My steps are done over a whole day - I’m doing things, resting for a bit, doing a bit more, resting etc all day...

So really what they are saying is “we had to change the website because pesky patients were being difficult, but we still believe that exercise is going to make you better”. Grrr..

And they have no idea how the virus spread to that family - it’s four family members who have tested positive. So far, no links to managed isolation facilities or to people who have been in quarantine have been identified. So it’s entirely possible that there is more significant unidentified...

I say that my ME came on after parvovirus. A colleague at work caught parvovirus some time after I did, and she died from myocarditis....

I get fizzing in muscles when I have overused them. It’s not like bubbles or even vibration.... fizzy is how it feels. I can usually get rid of it by complete rest...

NICE just seem to be making themselves a laughing stock....

My eyelids and eyebrows sweat when I am feeling particularly unwell.... and often my face goes very red. I can also have cold hands and feet at the same time!

I’m sure we all know of people who have had their ‘unnecessary’ chemotherapy stopped... A family friend who suspects he has a recurrence of skin cancer was told by the GP surgery that he could not have an appointment, and he must not turn up at the doctors. He was offered a phone consult.... But...

...because excessive exertion is often an activity that would be considered just part of normal daily life by people without ME. And daily life has to go on. Sometimes things don't go to plan in daily life or they go wrong, and they have to be dealt with. If I crash, it’s because of this. I...

Milkweed kills warts i think...

I was told once that you could warm up your hands/feet by imagining warm blood flowing to them.... I’m ambivalent about whether this might be possible and i admit to having done this a few times when my feet have been particularly cold- but if it is, then is it possible that imagining tingling...

So sorry to hear that the docs still haven’t sorted the problem out @Graham - it must feel like you are stuck in a hamster wheel of ineptitude. You would think that they might see that 5 trips to the hospital necessitates a change of plan! I hope you can get your GP to see sense and give you...

Welcome @Giada Da Ros to the forum! It’s great that you have come on here and I hope that you will find lots to be interested in.

Thanks @Invisible Woman and @Arnie Pye I was given a Graves diagnosis in 2012 when i first had problems. my T4 at that point was 36... and so they did the full set of antibody testing. I would love to not need treatment - I’m not averse to being a bit hyperthyroid - but what i really don’t...

Well - my GP won’t refer me to a specialist at the moment because I’m not technically hyperthyroid (yet). She thinks I’m over -anxious about it. She has given me a blood test form to do in 6 weeks. I had to push her to not make it for 3 months time. Can anyone here point me to any data about...

Thanks IW for the research! I’m just cursing my thyroid at the moment. None of the options look great. I had hoped that having had a number of years without problem that I might have got away with no treatment. I had also managed to convince myself that the LDN was for some miraculous reason...

My latest round of blood tests has showed that i am now ‘sub-clinically hyperthyroid’ - which is to say that my TSH is <0.01, my T4 is 16 and my T3 is also at the very top of the normal range. I have had this before - i was diagnosed with Graves Disease about 10 years ago... So this is the...