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Most of the time I dont notice it because i am not asking a lot of my brain. I gave up work because I couldn’t trust my brain any more, and my memory is pretty poor. I cant read a decent book any more. If I try to concentrate on something for a couple of hours, i get a headache...

I think it doesnt help that most people know at least one person who has ‘recovered from ME’ by doing the LP/Mickel Therapy etc... If we aren’t diagnosed correctly, and there is a widespread perception that people mostly get better, then why bother with spending lots of money on research...

Wow! Ive read as much as I can in one sitting and I’m delighted.... it goes further than I had dared to hope.

https://www.telegraph.co.uk/news/2020/10/25/second-lockdown-spells-unprecedented-non-covid-health-crisis/

From today’s Spectator: https://www.spectator.co.uk/article/the-long-winter-why-covid-restrictions-could-last-until-april The Sage scenario assumes 66 per cent of people with Covid showing symptoms: the last UK sample put this figure at 33 per cent. It assumes an ‘infection fatality ratio’ of...

@lunarainbows - absolutely, i appreciate the difficulties of trying to protect vulnerable people from catching Covid. But from reading the figures, it seems that hospitals haven’t been full. Certainly that seems to have been true in non-intensive care wards. And perhaps that is the right thing...

With respect, I think that unless you have actually been in this situation, then it is impossible to know how you would feel under those circumstances. What we are talking about here is not that treatment has been paused temporarily, its that her treatment is stopped. She doesn’t think that it...

I’m sorry but I don’t agree with this @Jonathan Edwards - my mother’s care has not stopped because she doesn’t want it - it has stopped because the doctors won’t see her. They think that the risk of her being exposed to Covid is too great for her to attend for chemotherapy. Which is basically...

She lives in the UK. From talking with her, the restrictions are having a significant impact on people being able to access healthcare - from the GP up. So a quick look for some figures leads me to this for the UK: The peak Covid day was 12 April, with 17,152 inpatients. The next day, the...

Does anyone know how many people have died because of the restrictions, rather than because of Covid? I have held off from giving my opinion on the management of the spread of the virus mostly because I really don’t know what the right course of action is. I feel that we should be trying to...

It would be far better if Berkeley could stop all the emails and letters to all your donors, and put a couple of percent back towards your salary! Especially as those people donating towards you are extremely unlikely to support Berkeley in any other way....

I took part in a research study for her a little while ago. 72 hours between tests - and I was better on test 2. Also my arterial resistance was apparently excellent.... I think my arteries were less stiff than expected for my age. I was, I have to say, disappointed (that’s the polite version)...

I find it totally amazing that researchers looking at dialysis patients can completely neglect to actually think about the medical side of needing dialysis. And that this piece of rubbish can get through peer review and publication.....

Donated :)

Eating something if I feel very shaky helps me to feel better. Eating more than I should makes me feel worse. Eating something with a high sugar content makes me feel worse. Not eating definitely makes me feel worse.... Being sensible, eating healthily and not too much seems to be the answer!

Thinking of you @Rosie :hug:

Many stutterers find that they can speak fluently if they wear headphones giving them delayed auditory feedback. I don’t know if this works for stuttering post-stroke - but in my experience, stuttering after stroke is easier to treat than developmental stuttering. I haven’t ever thought of...

I wonder if anyone is doing a study on whether giving steroids to people when they have Covid results in a lower rate of long-Covid/ME? Wouldn’t that be interesting to know?

I’ve had two root canals. The first one resulted in the tooth cracking in half and having to be removed a couple of months after the dental work. The second one I had done more recently and had a crown as well. Expensive - but no problems with it! I am very sensitive to the Adrenalin in the...

What about if the list was not just physical, but based around activities of daily living? Responses could be yes independently/ no problems, yes - but it’s hard, no - need help/it’s difficult, no - i can’t do this at all. So, for example: Can you- 1. Look after yourself (washing, dressing...