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I think that it is worth considering that an alternative diagnosis might come along at any time. One that may co-exist with or supplant the ME diagnosis. I am 15 years down the track now - and only now, purely because my father happened to be included in the 100,000 genome project, does it seem...

I have had Pfizer with only a slightly sore arm after shots one and two. The booster which i had a few days ago has given me sore glands under my arm. I also feel very wiped out. I wasn’t expecting to feel anything as I breezed through the first two!

Dr Vallings is retiring - not sure exactly when but if not already, then soon…

Ive never quite managed to see how living in the now helps to cope with abuse, neglect, poverty, violence etc…. It strikes me as incredibly cruel to suggest that people would/should/could be able to cope without distress if they just changed their mindset.

I was concerned about the survey - I’m one of the respondents who basically felt fine…. A slightly sore arm after the first dose only. I’m quite sure that my recent deterioration is nothing to do with being vaccinated and totally due to trying to do more than I can sustain!

I think we need a study of all the researchers in this area to look at their own health experiences….

The only problem I have is the description of FND as neuropsychiatric… It seems to me, unless i am reading it all wrong, that this paper is a good thing. Looking for biological clues for neurological difficulties.

Wouldn’t it be nice if they could just add in another arm to the trial in which people received social worker support to access benefits/financial support or help with daily living such as cleaning/shopping or a wheelchair…. But that would cost more money even though I bet that the outcomes...

Desperate… and digging the hole deeper and deeper.

Thank you for all this Hutan! I dont understand it all but I find myself feeling confident in Maureen Hansen… she seems to have a good grasp on things.

https://www.stuff.co.nz/life-style/wellbeing/126524794/like-bodies-like-minds-i-have-to-overcome-this-disappointment-that-i-have-with-my-body I came across this article this morning.

I think @Woolie might be the person to answer this!

********* :banghead::banghead::banghead::banghead::banghead:

@OverTheHills - I have Raynauds too… not severely thankfully. Certain fingers and toes are much more susceptible than others. Often it happens when I’m particularly tired or have done something stressful. Not always cold-related for me. Certain shoes will trigger it… I do have probable CREST...

I had my second Pfizer vaccine on Tuesday - arm slightly sore but no other side effects. yay!

https://www.litandphil.org.uk/events/products/truth-and-trust-in-medical-publication-the-role-of-editors-and-whistleblowers/ I don’t know if this is restricted to members or is open to anyone, but it looks like it might be interesting…

https://www.thetimes.co.uk/article/the-link-between-long-covid-and-me-could-transform-the-lives-of-sufferers-ghft7x0jm Another good article - thank you to Sean O’Neill…. I’m so pleased to see articles like this!

Sean O’Neill has written a good article in The Times today https://www.thetimes.co.uk/article/disputed-therapies-for-myalgic-encephalomyelitis-abandoned-r268lkv7x “Doctors will be told this week to stop recommending two controversial treatments for the debilitating condition myalgic...

What really bugs me is that someone can have migraine with stroke-like effects, and yet be diagnosed with psychosomatic seizures. It’s cruel.

I would be surprised if at least some of the people diagnosed with FND didn’t actually have problems due to migraine. See https://rarediseases.org/rare-diseases/hemiplegic-migraine/ for fascinating details.