Search results

Fingers crossed for you @TrixieStix that you get improvement...

Great t-shirt @Mike Harley - I love it!

If MS believes his ‘job is to write clear papers’ then he must have sleepless nights over PACE.... are there many papers less clear?

I’d heard of ME before I got sick, but the general thread of what I ‘knew’ was around the whole ‘yuppie flu’ thing. Now some people might call me contrary but I like a quiet, non-confrontational life, so there’s no way I’d have ‘chosen’ ME.

Apologies if this is a dumb question... but I’m not sure I am totally clear about what you are saying @Jonathan Edwards ... If B cells are switched on by diseases, does that mean that the more diseases you have had/the more your B cells have been switched on, the more likely you are to develop...

77% now - some lovely person has just donated $500 .....

:rofl::rofl::rofl:

But - if we ‘choose how active to be’ - then surely the actometer results should mirror the CBT and GET results, given that those two treatments are specifically designed to help us ‘understand’ that we can be more active..... So - by the rationale for PACE, it makes no sense to remove the...

#sharpendofME

I think we’re damned if we do and damned if we don’t..... The public perception of pwme has been so influenced by the bps brigade and the media and government support for their ideology, that if we shout out, we run the risk of feeding their narrative. It’s a horrible but clever trap that we...

I had visions of EC doing a lecture and finding the whole audience was DT clones!!!!!

Great news!

So glad the prednisone is helping... fingers crossed for the Plaquenil!

Donated - thank you @dave30th - loving your work!

So essentially PACE was a trial of how to stop those pesky patients from complaining? Obviously actual activity didn’t need to be measured - because the patients could be active if they wanted... This seems to prove that GET is just physical CBT in their minds. Fatigue is only subjective and...

It is also absolutely possible to be hyperthyroid and still have ME symptoms - although that rather surprises the doctors...

The whole ‘battle/warrior’ thing really gets my goat. The notion that you have to be fighting in order to deserve sympathy or support. I’ve accepted I’m ill. I’m not fighting it - that’s a waste of precious energy. I don’t see myself as a survivor or a warrior or brave or a victim etc etc. I’m...

Glad to see @Action for M.E. signing the letter to the Times. This seems to signal a change in position....

Am I right in thinking that the big problem here is technique? Some techniques appear to show the metabolic problems and others don’t. It’s like - everyone is looking for a horse - but some look for it in the field and some in the stable.... just because one group can’t find it doesn’t mean...

Presumably this paper was written because the authors had no clinical work to do, having had only 30 referrals to the service in total over a 12 month period. So they had to do something to justify paying them a salary. It’s unfortunate perhaps for them that the overriding impression is that the...