Search results

Update: one of our contacts at ME Association has replied and is also unsure as to who was meant by Dr. Shepherd and has stated they will try to find out what was meant. It appears ME Association was unaware in general as this contact is someone at MEA who would have been notified of such...

Richard Senior has since passed away and Annabel Senior’s official cause of death is unfortunately not listed as ME. This is one my family have researched before. We have also contacted ME Association regarding this comment as that is certainly not what they’ve communicated with us before. I...

Thank you so much for your lovely comment Tia, it is so much appreciated by myself and all our family ❤️

Fair enough Adam, I have been talking in respect of official cause of death so it seems we have been talking about separate things. We know there are others who have mentions of ME in their death certificates which aren’t unfortunately the official cause which is very different as you know and...

Also, just to cover this once again (when quite frankly I shouldn’t be having to do so as we have explained this as a family so many times on our page, in comments and now on here), we have researched this extensively. This includes having already looked at the ONS etc. What has circulated on ME...

Thank you Esther12. You are quite correct and those death certificates do not state ME as official cause of death unfortunately Adam. And to make out as a family we were ignorant and in doing so downplaying other deaths is, quite frankly, insulting. As it is to all the ME charities consulted and...

Thank you Trish. We have had to explain this before so we don’t take it as a criticism, we just don’t want people to be misled or to think that as a family, we would spread something like that if it wasn’t the case. Unfortunately, there is only Merryn and Sophia in the UK (though there should...

We have researched this extensively as a family as we would never want to take away from other families if they have official cause of death as ME in the U.K. by saying Merryn is only the second to have it. Nobody else, other than Merryn and Sophia Mirza have it. This has, again, been researched...

Hi Trish, thank you. I’m so glad that what we said was ok, we always worry so much that what we say may come across wrong or not do Merryn, ME and ME sufferers justice. We sincerely hope it came across okay for everyone! Sending you all the gentlest of hugs from all of us ❤️

Hi Barry, I hope you are having a kind day and no need to thank us, we are happy to do all we can to help the ME community. I completely agree about how the government trying to hope it will all go away and be ignored is the worst strategy. Hopefully though, with the snowball effect of...

Hi, I’m Amy (Merryn’s sister). The reason why they stated CFS regarding Sophia Mirza is because that is what is actually written as official cause of death on her death certificate, rather than the words ME. Her mother had to truly fight for any recognition but really wanted it to be noted as...