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  1. inox

    Open Qualitative study in Norway recruiting participants

    This is one of the studies I'm really looking forward to. Sintef have done exellent work in this field before, with two earlier evaluations. It's not about treatments or finding the cause, but in the current clima in Norway it will still be an invaluable study to document by such a reliable...
  2. inox

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    I would say this article is mostly about planning for saving some face as the tides are turning against the BPS-model, CBT and GET. They know this. But admitting beeing wrong doesn't seem to be an option - better blaiming patients for leaving the field. As long as things are moving forward, I...
  3. inox

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    How are you silenced by everyone else also getting a voice? Being so used to the privilige of going mostly unchallenged, that's - special... ... Edit: Just a stray thought after reading the very good Davenport twitter-thread, and it's contrast to the reuters piece.
  4. inox

    Denmark: Newspaper Politiken on PACE and the Cochrane review - David Tovey interviewed.

    Tovey really weakend Brostrøms statements. Brostrøms strawman was obvious? No-one claimed bedrest cures ME, Tovey clearly made the point we don't have data for negative effects of GET.
  5. inox

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Not even I am sure what I mean :noteworthy: I think making the argument biomedical researchers don't get harassed will just underline their point, of BPS researchers getting 'harassed' because patient don't like their findings. But I was still pondering about how to frame this article in the...
  6. inox

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Yes, but I'm not sure raising that point will be helpfull - as the article focus' on 'propaganda' to silence the research patients (allegedly) just don't like, it will underline their point? That's actual a nice little tactic from them, trying to undermine the counter-argument. If any of these...
  7. inox

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Ah, clever :thumbup: I'm not good at twitter, so wouldn't have thought of that.
  8. inox

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    It's an amazing amount of spin collected in just one single article...! :noteworthy: It's like it should win a prize of some sort? :trophy@ I've actually gotten numb to these attempts of stiring emotions, so my reaction is maybe a bit different. I don't think this is that bad, as it may seem at...
  9. inox

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Yes, that is my suggestion - this article could be used as an marketing effort of S4ME, to get more people exposed to the actual critice and debate going on. Maybe not sharing the article itself, but point out this obvious hole in it: "Come find out what those terrible patitens are saying -...
  10. inox

    News from Scandinavia

    Thank you for reassuring me :) mostly my own insecurity, about foreign language and foggy brain. I usually avoid the more sensitive topics as it is so easy to unintentionally get it wrong.
  11. inox

    News from Scandinavia

    His 'goodby-article' is rather a facinating read. How do you go from: To: I just don't get it? The arguments seems convincing....? How about the actual science? Never mind the quackery quality of the science. Good job 'Dagens Medicin' :thumbup:
  12. inox

    SMILE trial data to be released

    Yay! Well done and amazing job, thank you! :thumbup:
  13. inox

    News from Scandinavia

    Really hope I didn't sound to insensitive, it's all terrible sad situation. Just ment as a reminder that we don't know.
  14. inox

    News from Scandinavia

    Oh, no. Not again...... How heartbrakingly sad :( :broken_heart: Gertie Gladnikoff is said to be a patients representative in the article. https://www.svt.se/nyheter/lokalt/vasternorrland/me-foreningen-sjalvmord-och-dodshjalp-forekommer Now the articles I read don't have any indication of...
  15. inox

    Withdrawn: Interventions for fatigue and weight loss in adults with advanced progressive illness (2017) (Cochrane): Payne et al

    I guess this is why the timeline seems off? Does this mean they put up the new version that didn't meet their expectations - after they had made the decision of withdraw....? https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD008427.pub3/full
  16. inox

    Invisibilia: For Some Teens With Debilitating Pain, The Treatment Is More Pain

    :bored:.....:mad:......:banghead: This would be exactly the same theory as how chronic pain happens - 'central sensitivity'.
  17. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    I agree. "The amendment will not include a full update, but a decision about this will made subsequently." This is about giving the current review team a very, very last chance to make amendment to the current review - and there are strongly worded critisismen aimed at the review team, for the...
  18. inox

    Trial By Error: Stupid Studies

    That actually sounds like a fun outing, I'd be willing to try - in the name of science :-P But I worry 'true belivers' could try and frame it as: 'Extra intensified mindfullness - making use of an inclosed space to help minimize outside stressors, to maximize the effect of music theraphy...
  19. inox

    Trial By Error: Who Has the School Study Documents?

    No, silly - it's just a pilot for a new service :noteworthy: no need to keep records :rolleyes: (.....the tongue in cheek is obvious, I hope? :p ) also - :banghead: :mad:
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