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They did use 'activity tracker armbands' (not sure what they are called in english...?) as secondary outcomes. Not read the trial in detail yet, but this table compaires the different results...

Generally not true. But more importantly, all patients in the trial had to fulfill the Canadian consensus criteria, and they re-screened participants before entering them in the trial.

As @andypants also says - it's impotant to be aware that both prices and how the courses have been conducted have changed over time (at least here), and individual coaches might have introduced their own variances. That's an obsticle we've faced with testimonies in Norway - not realising that...

Oh, sorry about the very long post - guess I was a bit upset about this... :-/

Bet I could guess who she "the correrespondent in Norway" who is invested in the skeptic community and very skeptic to both ME as a diagnosis and research into rituximab is... (but not going to, of course) In general, the skeptic community here have been very dissapointing - think how much more...

That sums up most of her statements really, as with Landmark we've learrned to always check sources and claimes made. Olafsen and others are doing a very good job in the commentaries :)

Sigmund Olafsen is a 'civil engineer / senior researcher in acoustics. He is also a relative'. He also have written some good articles about PACE and highlightning it's faults, mainly focusing on that the data never supported the researchers claims, in a very factual style. April 24 he had...

It's a typical Landmark-spin on things. One of her main arguments for years when trying to demonize the ME association and doctors working with patients, have been the much lower diagnostic rates of ME in Denmark and Sweden. Where the illness have been less known and almost impossible to get a...

Never heard of Vaaju before. Their about-section is from this january: "VAAJU.COM is an intellectual propriety of VAAJU Technologies Pvt. Ltd, a company formed by a group of young techno-entrepreneurs who strive to drive the largest content repository of news from across the globe for readers...

Thank you so much, Dr. Nina Muirhead - not many doctors are open about having ME, even less also share their experience. We know the stigma you face, thank you <3 Just like to highlight this part, it's such a strong statement:

I'm sorry, even if I did agree with the main point, there is just to much other stuff not related to disease descriptions to sign this. It feels more like a blog with several posts than a petition?

I could read the danish original through google translate, but stopped by paywall on the original link. Wierd. It's not mainly about functional disorder, but the vote to use the WHO-codes seemes to be the last drop for this author. It's about what is percived as political intervention in...

forskning.no - is an online news magazine about research (forskning = research). Yesterday they re-posted on facebook an article they wrote about a year ago, on the Wilshire et al re-analysis of PACE. "Therapy and exercise do not help against ME." [norwegian - google english] :) Could be a...

I agree, but just like to add, a big part of why the norwegian ME-community is rather close-knit, is our own bps and LP proponents very active use of the media. We've had to find ways to raise our voices in the public debate, and perhaps have an sort of collective awereness of the need for...

Also note it's sorted under 'neurology' - wonder if that is that new? I think it's rather good actually, even if it's short. Mentioning an Uppsala professor working with Stanford and Harvard is the main signaling effect here, to health professionals, I think:

'Look at all these people getting healed from ME by psychological methods" At least that's how our own lot over here argues when referencing recovery norge stories. Oh - and also - 'look at all these people getting cured from their ME, those pesky ME-activists are obviously lying about ME...

It's sad, isn't it? And unbelivable unscientific. The leader for the norwegian competance service for ME does this to, actually refer to Recovery Norge in talks about long-term outcomes. The slides are posted on their own webpage. I can't even begin to express how crazy this is, without...

Edit: Just to make it clear - Kristian Gundersen is a Professor, section of physiology and cell biology, at the department of biosciences at the University of Oslo. He has his own research group. https://www.mn.uio.no/ibv/english/people/aca/kgunder/index.html -- Kristian Gundersen is an...

@Snowdrop - the date on the article is september 4th, 2017. Not that it matters much :) Thanks for linking, don't think I read it at the time. Since I learned about ACT up and read up about what they actually were doing at the time, I've always wondered how the BPS-brigade would have reacted...

I don't think there is much need for manipulating actually. As others have pointed out, there isn't much investigative journalisme these days. Papers have cut back on number of journalist, and they are under pressure to push out more pieces. It's more or less the norm that a journalist is...