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That little laugh from the female, right after the questions is asked - says it all, doesn't it...? :( It actually really got to me, stepping away from this thread for now.

I do agree, overall, but think this is just this years focus for applications? :) It's been focus on biology earlier years, rituximab, Liens lactate study, an unpublished immune study etc have gotten money. And I think it's good, to stimulate some research in symptoms relief now. Norwegian...

This isn't as bad as others looking into mood and ME. They are not making assumptions about causation. They are only observing that children who have been ill for longer before specialist assessment have more worries/mood issues. This mostly looks like presenting data for arguing for faster...

Just to make it clear, they actually did studies and experimented on people - without ethichs approval. The ethics commitee reported them to the Department of Health. Decline letter, for retrospective application - note, the studies they did wouldn't have been approved anyhow...

Oh, and I didn't see that functional disorder paper - that would have worried me too! Don't understand why he is involved in that, but the things I'm finding seems good? He signed this for instance, appealing to the Netherlands...

I didn't know Mehlsen, but googling him would suggest no need to worry to much?He was engagede in removing ME from functional disorders in Denmark. He is very clear in this statement at the danish ME association: https://me-foreningen.dk/om-me/informationsmateriale/ Also, I didn't read the...

Ah, no - sorry for the confusion. Just me worrying about the overall attitudes at the National Institute of Public Health, beeing quite a bit nervouse about what to come. We've heard nothing yet, that I'm aware of.

Just note that our local bps-crows mainly consists of non-psychologist, mostly doctors. Flottorp, who made that statement, is a medical doctor.

Signe Flottorp is at National Institute of Public Health, and involved in the Cochrane Norway project connected to the institute. She also have been involved in doing litterature searches for ME/CFS (a service they provide). I find her statement worrying, as for the impending update to the...

So, they don't have patients input when planning these things...? Wouldn't be surprised if they thought this would be well recieved - and that they were progressiv and 'on the edge' for promoting pacing, not that pesky cbt/get that patients get upset by :rolleyes: Completly missing that...

Forgive me for jumping in, have not been following the thread. But just saw this tweet, and thought it might be of interest for others.

The patient is described as very severly affected - yet, she was able to both visit the clinic and do a standing from and sit down to chair test. My lower body, feet and walking also is affected when I get worse, but is back to normal as soon as my overall condition improves a bit. No exercise...

Wyller have always used unexplained fatigue for at least 6 months as his proxy for ME. He often rerefers to this review by Larun et al to justify this - see comments - there are claims about widest possible criteria is the best for research etc. https://bmjopen.bmj.com/content/4/2/e003973 His...

Lay persons write up, by a severe ME-patient. Includes quotes and comments by main author Katharina Lien. There was a short presentation of the study on the radio this morning, link in the blog, and a longer interview coming up tomorrow. Hopefully the publication will spark some usefull debate...

Yay! :-D It's finally published! :party: We've been waiting for this one for a while. :) Have other exercise studies done this? If not, could this explaine some of the difference vs other studies...?

So they published it just for the controversy - clickbait style. How nice of them..... :eek:

Oh, I'm so tired of this. After years of studying the condition, it's back to the same rethorics we've had going for years and years - that his science was supposed to find an answer for, one way or the other. Even if you know nothing about PACE, him not mentioning his main work sure would...

Oh, you can't access it now either? Was just linking to a table in another thread, not realising it might not be accessible to all. I can read it now, not sure why.

When this was reported in norwegian media, without any linked source, my first thought was 'strange @Dx Revision Watch haven't mentioned this? Must check with S4ME to see what the real story is. :) Even if not commenting on the other thead, I do try to follow it and learn from it, just wanted...