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Oslo universitetssykehus - is the ‘home’ for our bps-brigade. The national service for cfs/me (yes, I know - it’s actually named that) is located there. The one lead by Ingrid B. Helland. The authors are actually all women. Not that makes it any less cringe. I think it should mainly be...

I’m even pretty sure Wyller himself did a brain scan study that showed this?

Not that it’s important for the findings, but the cohort is not part of a study on pregnacy during the pandemic especially. It’s from MoBa, an ongoing, long-term project ment to follow up families over two generations. MoBa - mor barn (mother child). Even if fathers also are included. It...

This isn’t pacing. It’s cbt/get combined in one single framework, presented as ‘pacing’

Body shutdown? I can have episodes that I think of as more the body turning off, to protect myself from hurting me more? It’s not sleepy or tired, no amount of willpower can stop it from happening. It usually happens if I’ve tried to pretend to be normal for a bit, and pushed through body...

A bit of a sidenote, but both this scale and in general questionaires for studies/online studies doesn’t take in conciderstion just how long people can be sick. If you fall sick in youth, ME will usually be a lifelong illness. I have given up answering and partisipating so many times, because...

Remember that Stubbhaug ‘study’ - I’ll use that term loosly - about his own rehabilitation Clinique, he was doing the theraphy, he was selecting patients and based om how ‘motivated’ they were. And he benefited from the result by getting prolonged contract with the local health district. Every...

I’m baffled. Three doctors and a professor are putting in plain text: - there was no scientific evidence - so we just made our own theory about how things work - and made up a treatment we have no idea about will help And seemingly expect no backlash from doing so...? What does this tell us...

This study obviosly didn’t include patients we in the community would call severe cases. To be included you had to - within a 3 month window : «completed the SF 36 questionnaire, worn a SensewearTM armband for five days, and undergone a cardiopulmonary exercise test» You don’t do exercise...

@strategist Remember this article is aimed at a Norwegian audience, where we have a ‘patients’ Organization for self-declared ‘well’ again from ME - making lots of noice about (among other things) how activity made them better, and the me associations advice (pacing) was hurting their recovery...

Why this PR-campaign, for a study without ethical approvement? So the regional ethics commitee(REK) has not even gotten an application yet. Actually glad to hear that. It would be quit a downfall, if this suggested LP-study, as other proposals before it, didn’t get approved. I’m not sure how...

Googled some more - was not aware ‘seriouse game’ is an actual used expression for games with learning focus. «A serious game or applied game is a gamedesigned for a primary purpose other than pure entertainment.[1] The "serious" adjective is generally prepended to refer to video gamesused by...

Searched for ‘the seriouse game LAKA’ not really expecting to find anything. But that’s actually how the developers themself describe the game. It’s a game developed especially as a rehabilitation tool, supposedly based on buddisth theory. I think it sounds more like cbt hidden in an...

For the Chinese herbs one that got withdrawn, the page now looks like this: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD006348.pub3/full/es You can access the review still, but only via the version controll section. (At least that’s what I’m able to find) The main page is...

Good to have documentation on the negative impact of rehabilitation stays for children. Hopefully this could lead to some changes...? Not that I’m to optimistic. For children in Norway, there is only one rehabilitation center available. And they are unfortunally heavily influenced by Cbt/Get...

Yes, the Bakken et al study from 2014 found peaks for teens/per-teens. That study do have data for both genders though, even if coverage often focus on the very large peak for young females They actually found a similare peak for young males, just with about half as many cases in the gender...

It should also be possible to obtain from the regional ethics commitee (REK) I belive. Link to English page. https://helseforskning.etikkom.no/reglerogrutiner/administrativerutiner/offentliginformasjon?p_dim=35030&_ikbLanguageCode=us

Sorry about the very late reply to your post. This was a point I wanted to make, but never got around to. I think we need to keep in mind that her statement was aimed at the Norwegian ME-debate. She has been activly engaging in the debate here, and knows her proponents arguments. One of them...

This is utterly stupid. "An online survey across pain/fatigue services in English National Health Service trusts explored healthcare professionals’ opinions on the types/uses of pacing, aims, facets and perceived effects." The only thing this study could be used for, is documenting just how...

Yes, I have no doubt he still supports PACE. But even so, neither PACE or Cochran have been used much as arguments lately? This is the first time I remember the NHS beeing brought up to support claims. I would guess the bad press around PACE and Cochrane might have something to do with that...