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  1. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    My impression is that's more directed at people posting protocols but not really working on their review? This review is written up, since we know it's been to peer-review - but have problems passing that.
  2. inox

    News from Scandinavia

    There are others better equipped to comment on the situation in Sweden - but this seemes to perhaps be an important judgement? maybe setting precedence for ME-patients....? :) or is taking it to court just "standard protocol"? :/
  3. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    But this is the one we wished they had used..... Before it ever got published. Rejection of Cochrane Reviews https://community.cochrane.org/editorial-and-publishing-policy-resource/cochrane-review-management/rejection-cochrane-reviews
  4. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    Policy on withdrawing published Cochrane Reviews (including protocols) https://community.cochrane.org/editorial-and-publishing-policy-resource/cochrane-review-management/policy-withdrawing-published-cochrane-reviews-including-protocols Process in the event of serious errors in published...
  5. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    Not in detail, I guess, but there is information from cochrane linked earlier in the thread. As I remember, there is an option for the editors to override and make the decision - but that the norm is to try and make an agreement. There seemes to be focus on the autonomy of cochrane...
  6. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    And since it hasn't happened yet - I guess we're not likely to get a statement or article from Larun et al either, before the decision, whatever it is, is final?
  7. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    That's the great irony in all of this - it haven't actually been withdrawn yet. The e-mail that enden up in Reuters was a request to the reviewers, for them to agree. Going public blaming patients for pressuring, they probably hoped to get Cochrane to back down and leave the review up? But...
  8. inox

    News from Scandinavia

    Ah...! Never mind me :-P
  9. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    Still not withdrawn - it's become part of my morning routine, the first thing to check :rofl: I'm sure they are in discussions now - as they should have been many, many months ago...
  10. inox

    News from Scandinavia

    Wait, did Larun attend? From the progam she wasn't a speaker, I think?
  11. inox

    Concerns about Cochrane

    Forgot to add, that whole blogpost is worth a read for those concered about the inner workings and governance of cochrane. Includes analysis of several of the remaing boards statements, and how they are misleading about what the rules they cite really are ment to be about etc.
  12. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    @Brian Hughes - thank you for engaging in this! :)
  13. inox

    Cochrane ME/CFS GET review temporarily withdrawn

    I'm not really worried about Vogt in this, he doesn't have that much impact. I suspect many healthcare workers don't take him very serioulsy. What I do wonder, is the respons from Larun et. al, or the competance service. Surely they must feel the need to defend themselfs? This is a hard hit on...
  14. inox

    News from Scandinavia

    Oh, I forgot, thank you for the summary @Kalliope :) First reaction a little bit shocked by choice of user representative. But that might actually be a clever move, and useful for patients advocates. Since the argument from the local bps-crowd was that patients representatives had bias against...
  15. inox

    Concerns about Cochrane

    https://therealrthorat.video.blog/2018/10/24/authoritarianism-at-cochrane/
  16. inox

    David Tuller: Trial by Error. A statement in Support of Cochrane

    Oh, WOW! Having a high pain day and a bit emotional - this got me right in the feels. Thank you so much, David - and all the signatories! You know exactly how much this means for us :heart:
  17. inox

    No Such Thing as Too Much Exercise, Study Finds

    That's not really what this study was about though? The thesis they tested was: That seems relevant and fair to research to me?
  18. inox

    No Such Thing as Too Much Exercise, Study Finds

    The study, free access. Association of Cardiorespiratory Fitness With Long-term Mortality Among Adults Undergoing Exercise Treadmill Testing Kyle Mandsager, MD1; Serge Harb, MD1; Paul Cremer, MD1 https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2707428
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