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Isn't Carolyn Wilshire in New Zealand? She might have made some positive impact :)

You know what Landmark and the norwegian bps-crowd's spin on that is...? Evidence that ME-patients needs continues treatment to keep up the good treatment effect..... :-/

And online, the note is also published at the bottom of this page - 'History': https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub7/information#history Not exactly easy to find.... edit: But it's not hidden @Wonko :) if you click on the "what's new" on the main page, you...

@Barry - I found it via the Cochrane site :) It seems like they have two versions, one beeing a sort of pfd-preview/pdf e-reader file and the other the main file. The updated version is in the section for version control. Seems like someone forgot/didn't know that putting up a new version in the...

From the Cochrane thread, I think someone already did? Or at least the article was corrected https://www.s4me.info/threads/cochrane-me-cfs-get-review-temporarily-withdrawn.6225/page-26#post-115526

So this is "how alzheimer research got it wrong for 20 years"...? *sigh* There's no self correcting in science, if one ignores the evidence correcting you... Sounds way to familiar. :-/

Yes, this is what I'm worried about too, I see that scenario as very likely :( But if that happens, we would still have the US and dutch pulling cbt/get from their recommendations? Could really Tovey/Cochrane live with beeing the odd one out? And wouldn't there be an outcry amongst our steadily...

Also this, Cochrane Norway beeing located at NIPH, (probably) beeing the same people - have been part of the problem in Norway. Trying to criticise the Cochrane reviews, you would be taking on both these entitites with deep rooted trust at the same time.

I'm not sure that is the right way to think about it. It seems to me, the reviews are seen as "owned" by the authors. So they would in charge of their own review, and have the responsibility to keep it up to date. But the editors are responsible for overseeing this, but decisions are usually...

Larun is employed by the Norwegian Institute of Public Health - NIPH (the translation they use themselfs). So is Kjetil Brurberg, the other norwegian author. I read that mostly as throwing in the name, trying to add weight to the statement. NIPH have massive trust in Norway. If others are...

No, the other way around, I'm afraid :( It stil stands, that's just information about the process up to making a descision. This is how it would have been marked if it were actually withdrawn (the chinese herbs for ME review)...

Yeah, but on the other hand - from the Goetze saga we know that Cochrane doesn't shy away from using lawyers themselfs. And Cochrane, especsially at this point in time, would be severly damaged as the brand they are trying to market - if that where to happen and it came out that they caved in...

It's ment to sound bad - it's a statement from a researcher getting her work scrutinised. But that's nothing more then we expexted going on? Re-reading the piece I notice how very much biased in favour of the researcher it is, even if not so openly as the reuters story. 'A team of experienced...

Norwegian article - CFS / ME: Cochrane wants to retrieve summary article - based on the reuters story, but also their take on this, and more factual even if they don't include anything about what the criticism actually is. Larun is a physiotherapist, and the journal is the norwegian journal for...

I undestand dr. bragee may be somewhat controverisal, but this is good :) Would think he has been confronted by patients himself, on some claims not that grounded in seriouse research?

:rofl:

Quotable quote in the preview, picture text: "Science is science and it will be questioned when there are reasons to do so. Cochrane will not withdraw anything just because there are obstinate relatives or patients." No, no, no. They do it because there are flaws or things that need to be...

:)

maybe post this in the cochrane-thread as well? :)

Oh, I'm so sorry, that's terrible for all sick people, so, so hard for people with ME :(