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We're not the only ones with negative consequense from null-findings beeing reported as positive studies, hidden data and government recommandations based on bad advice :-( http://ijme.in/articles/the-crisis-in-cochrane-evidence-debased-medicine/?galley=html#.W-B0LGYKq-k.twitter

Oh, the saga is not yet over.... https://translate.google.no/translate?sl=da&tl=en&js=y&prev=_t&hl=no&ie=UTF-8&u=https%3A%2F%2Fmedwatch.dk%2Fsecure%2FSygdom___Sundhed%2Farticle10989360.ece&edit-text= https://medwatch.dk/secure/Sygdom___Sundhed/article10989360.ece (danish source - paywall...

Thank you for the link @Sean :)

And of course this bit is spectaculary untrue. It's controversial because it goes against patients experiences - and the main symptom of the illness. It's controversial - because the claims made goes against solid research, on the very bad effects exercise have on an ME-sick persons body.

*sigh* They (of course) attempt to do just what several of us suspected... I do wonder what Cochrane's respons to the updated version will be, crossing fingers they will be able to see throug any attempts to do minor changes and hiding bias. Is this true? Does anyone know what studies he...

I read that as he's angeling for the "angry (male) online activists attaching themselfs to any cause" - as they have done before? And that was dismissed in the court case over releasing the data? Maybe time to look for any useful quotes from the ruling....? Edit: But with his usual vagueness...

:rofl: It's her legal name, yes. :) Live is pronounced more like "leave-eh". Sounds different to english speakers I'm sure, but Live is a common enough female name over here :) 2 858 females to be exact, just checked with the Statistics Norway database ;) Landmark a bit less common, only 420...

No - she is the person who brought LP/lightning process to Norway and is heavily involved in promoting of LP for ME-patients (beeing a former patient herself). Some may call that a cult, but not likely the one your thinking of?

Yeah...... :-/ It's not even an interpretion of something she said or something vague like that - it's direct quote from a statement she made about the Smile-study...

Finally finnished it all, and it's just so good and spot on! You relly do have both a clear eye and a sharp pen Brian, thank you! I can see why also non-patients are taken by this post - you explain the going on's in a very approchable language. The whole thing is quotable! But this little...

David Marks have made a similar point - I love how these psycologist/psychiatrics (?) can, and do, say things no patients advocate could allow themselfs :thumbup: https://davidfmarks.com/2018/09/22/psychology-science-or-delusion/

But remember - we don't know how the e-mail ended up in Reuters. We don't know if this media exposure was orchestred by Larun, someone on her team - or (more likley?) someone else...? I suspect, someone on the team might have showed the e-mail to someone they have a working relationship with -...

But since it's so one-sided, could it be possible to advocate for a podcast with arguments from scientist on "the other side"? David Marks would love some airtime I would guess, or Geraghty - or others?

After going into some detail about 6 different known cases of fraud at the London University, he ends with: Feeling a bit excited about the "To be continued..." part ;) :D

That's good to hear - amazing how much difference a person can make :)

But Vogt isn't really working on ME or even functional disorders, even if he has written some opinion pieces about it. That's the wierd thing about him - and several other prominent voices in the norwegian ME-debate. They don't work in the field, even from an BPS- approach. "The ME-debate" over...

@Kalliope Or others, do we know where this information comes from? It's the one thing not linked? As the study is not stopped, we know the complaint didn't succseed. The reasoning from the NBHS would be good to know, and possibly and advocatong tool? And didn't the same happen to the...