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Good on them for taking action :thumbup: Will have to process a bit, what I think of the FHI and the NKT..... But just HOW...??! How can they think a discussion on PACE is to controversial to include in an actual research conference - but see no problem with including a "review" of a VERY...

Also, they can be actual symptoms of the illness itself. Brain inflammation, inflamed gut or inflammation in general, will often do things to your mood as well. edit: spelling :)

This was a concern Fluge and Mella had with the rituximab trial. Both the risk that patients would unblind themselfs, and knowing there were proponents of the trial that would have loved something to dismiss results with (if the trial had a positive outcome). They asked the participants not...

:heart: Also signed by three specialist in psychology and a couple of professors. Most of all, deeply touched by several non-patients fronting these issues and putting their name to the cause. That's just amazing. People have avoided getting involved, to not have their name connected to "the...

Jelstad wrote up this post, after a talk Wyller gave on ME in 2014, about among other things ME and personality types. He was introduced by Ulrik Fredrik Malt, a professor in psychiatry and strong BPS and MUS-proponent. The post have sourced information about studies on personality studies in...

I'm sorry to say that I'm not surprised - sad, but not surprised :( It's really hard to explaine just how ingrained LP have become in the medical profession in Norway. Landmark have been working on getting in this position for years, and very good at it. LP is generally not considered...

From november 9th, in "Sundhedspolitisk tidsskrift" - (journal for health politics) - Vaccine research: We need Gøtzsche https://sundhedspolitisktidsskrift.dk/nyheder/1486-vaccineforsker-vi-har-brug-for-gotzsche.html...

Good letter :thumbup: The title is a reference to a speak Erna made on may 12th in 2015, when she opened an art exhibition by ME-pastients...

Edit: It must be just the 2 new comments added. Not a new version number, and not a new date. --- This note have been added in the version control/what's new. Not sure if this means changes to the review are done - or if it's just the 2 new comments added in the comments section...

:thumbup: That's amazing, I skimmed through the blog when first posted here - it's now a very different story told. And thank you Astier, for both beeing open to new information and helping spreading it - it's so very much needed. :)

Listening to the talk again, it occurs to me - had the PACE-authors just tweeked thing a little bit less, it would have been easier for them to get away with it. Had they moved the goalpost just half as long - and gotten rid of the claime of recovery - the results wouldn't have had such an...

Yes, this is the important part, the main finding: Edit: was ment as a reply to @Manganus first post, forgot to use the reply button :-P

Paul Watton, who wrote the initial tweet that Sharpe replied to - have now left a comment on the Virology blog. Thanking everyone that replied :) (last comment, at the bottom)

Alem's mom :broken_heart: oh, that bit got to me - thank you Australian ME/CFS Community, for standing up for them. And standing up for us all really, that was a rather powerfull read.

It's hard to be sure how someone coming into this will percive this whole mess, and it's bad that we have to worry about that :( But from a bit of google'ing I think she is the real deal. For some reason I can't get google translate to work for SVT-links, but here is something she wrote after...

I did some more digging. The contact adress for "CONEM" seems to be the same as Geir Bjørklund's private home. At the same adress he has another company registered - Bjørklund Pharma AS. . http://www.bjorklundpharma.com/ Edit: Corrected last name, had written "Bjørkmo" one place - correct is...

The main author is norwegian, but I've never heard of him or this CONEM council before. Please take a look at this "Council for Nutritional and Environmental Medicine (CONEM)" - it's not a public entity. It's founded by the main author, who also is the president...

Mentions several things he tried to do/change from within during his time on the board, including this - important to us: And he has submitted a complaint to the Charity Commission.

Thank you :thumbup: I can't remember ever seeing his name in the "ME-debate" here, so they are really pulling ranks to defend their work.