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  1. Scarecrow

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Perhaps the scholarship was for a Masters or PhD (or DPhil since it was at Oxford)?
  2. Scarecrow

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    @ladycatlover Allow me. :sick::sick::sick: It lacks a certain graphic quality but the sentiment is there.
  3. Scarecrow

    Jane Colby Tweet Forward ME

    I found the other reference to NICE at the UK ME/CFS Biobank / Unrest Q&A. It was by @Jonathan Edwards , not Charles. Thanks @Skycloud . I wouldn't have bothered searching if not for your memory.
  4. Scarecrow

    Wessely gets touchy feely

    Reading this thread, I'm not sure who thinks this is an original comment from Wessely and who thinks he was quoting someone else. His use of quotation marks suggest that it is a word for word quotation from The British Journal of Psychiatry Editorial 'Shrink rethink: rebranding psychiatry' by...
  5. Scarecrow

    Jane Colby Tweet Forward ME

    @large donner , it's Charles Shepherd's stated view that they are not fit for purpose. No doubt NICE's official stance would be that they were acting on the best evidence available at the time, blah, blah, blah. As far as I'm concerned, the BPS crowd can churn out all the crap papers they can...
  6. Scarecrow

    Jane Colby Tweet Forward ME

    I wondered about that but wasn't sure. If anyone can find that point in the video, I'd be happy to transcribe.
  7. Scarecrow

    Jane Colby Tweet Forward ME

    I think that Charles Shepherd may have given us a little snippet of a sneak preview during the Q&A after the screening of Unrest by the UK ME/CFS Biobank. He was responding to questions about using the film to persuade the medical establishment that this is a real disease and to improve the...
  8. Scarecrow

    Thyroid, autoimmune thyroiditis, Hashimoto's

    I, too, get those dull headaches, but also migraines. Until recently I didn't realise that they were connected so am sharing my experience with you as you may be missing a useful treatment. You may not initially see the relevance but bear with me. Like @Maria1, my migraines are strongly...
  9. Scarecrow

    Neurometabolites in anterior cingulate cortex in CFS:magnetic resonance spectroscopy study @ 7 Tesla

    Thanks, Andy, but that is specifically for MS. Maybe we need an 'Other' option in that section on the same level? I'm in no hurry, though. The worst that'll happen is I'll forget all about it.
  10. Scarecrow

    How to find a lightweight duvet?

    That sounds fab-u-lous. I'm now calculating how quickly I can justify ditching my not quite sad and old enough duvet.
  11. Scarecrow

    How to find a lightweight duvet?

    Here's my low tech solution. You can search for duvet weights on Amazon, eg search '1000g duvet' (1000g seems to be more or less equivalent to a 4.5 tog). Buy one lighter and one heavier duvet and get some safety pins for the winter months. I end up using safety pins for my mother's duvet...
  12. Scarecrow

    How to find a lightweight duvet?

    @Sasha I don't have a quick and easy solution for you but a lot of sites do have the information although different sellers aren't very consistent about how they present it. Sometimes you'll see it under Production Information, sometimes Technical Information, sometimes Additional...
  13. Scarecrow

    Neurometabolites in anterior cingulate cortex in CFS:magnetic resonance spectroscopy study @ 7 Tesla

    I would like to set up a 'What is depression?' thread to avoid taking this one too far off topic but I'm not sure where to put it. We've often discussed the inappropriateness of depression questionnaires for ME (well you guys have, I've just read along) but I don't recall that we've ever...
  14. Scarecrow

    Getting Glasses When You Have ME-related Variable Eyesight

    Thank you. That's the one. I have a 'memory' like that but always thought it was a dream. Maybe, maybe not.
  15. Scarecrow

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    Your second quote more or less answers the first but also, bear in mind that in normal practice the AHPs would take an extensive verbal history in addition to the physical examination. Edited to add: as someone who has been to a Perrin practitioner, I always wondered what weight was given to...
  16. Scarecrow

    Are there symptoms you had in the early stages of ME that you no longer get?

    Loads of stuff I never get now, some were a bit weird: horrendous calf pain that would stop me from sleeping oversleeping (when the calf pain wore off) and napping during the day. rapid muscle fatigue ridiculously bad post nasal drip (who knew a person could produce so much mucous?) feeling...
  17. Scarecrow

    Spoonseeker blog: A (Second) Letter to Dr Phil Hammond

    @Spoonseeker Thank you for trying to change the format for those of us who have trouble with all those pesky words. Two columns are appearing on my laptop screen and that has helped. [Tip for anyone still having difficulty with two columns: cover half the screen!]
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