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I haven't found any reason for this yet in the paper and I'm not able to read all of it just now but, anecdotally, I know that Dr Perrin believes that people who develop ME (or CFS, as he himself prefers) do so in part because they are anatomically susceptible and that relatives are likely to...

Yes, do tell us Simon. What did you all manage to do? No, the jury's still out on that one. Well done for finally understanding what so many of your patients were telling you. So, you erroneously believed one thing and then disproved your theory. You know, Simon, you actually sound a bit like...

No, not at all. Sometimes, 'the other place' seems right.

Of course!! Obvious when it's pointed out. Paul Watton. Thanks

What does GOP stand for? I feel such a thickie that I can't see it anywhere but all I can think of is Grand Old Party!

Naïve question, probably. Why do you think that? Is it based on your own experience or on something else you know about. One the face of it, I would have expected an OT to be a positive experience, provided they focus on assistance aids rather than assuming that the pwME will inevitably become...

Me, too. Up to my late thirties I would have said I had recovered if you were my employer and that I was about 90% if you were my friend. I definitely had less stamina than other people and my brain had never got back to my 15 year old self but otherwise I was rarely symptomatic. I never would...

I know very little too. They've listed Cort as a supporter on the 'about us' page, mentioning his blogs and HR and PR. I don't think is a surprise, since Cort seems to be adept at cultivating links. In the support section they promote the following forums: Phoenix Rising Health Rising...

The board chair is Marcie Zinn http://me-pedia.org/wiki/Marcie_Zinn

Language, eh. Don't you love it? How can we standardise what we mean? I used to have the malaise/flu that never ended until, finally, it did. Sometimes I still get it with PEM, but generally it's 'just' the whole body pain and headache that @Trish describes (plus a sore throat and a stuffy...

Yes, CDC 1994

292 staff were affected and 12 patients. Anyone in their 20s at the time will now be between 82 and 91, so it's likely some will be alive. Plus there were other staff and patients who would have been 'involved' even though they were not affected.

I've never understood why osteopaths have such a poor reputation. What drew me to an osteopath was the Perrin Technique but I went with the attitude "well if it all turns out to be nonsense, perhaps she'll be able to do something for my back and save me a wasted trip". For years the muscles...

Actually, you might find that some of the links are pay-walled.

It's the Science Library in the ME/CFS News and Research sub-forum. Here's a link: https://www.s4me.info/index.php?forums/science-library-read-only.67/ Yes. Free access. No fines for late return. No need to apologise. We're all here to help each other!

The first slide in the TEDx talk was of the cover of a book by Hugh Verity: "We Landed by Moonlight: Secret Landings in France 1940-1944".

@Perrier , I forgot about the Library here! @Cheshire has kindly provided a list of articles and links: https://www.s4me.info/index.php?threads/%C3%98ystein-fluge-and-olav-mellas-me-cfs-research.183/

Here's some step count data from some of the responders in one of the earlier trials: http://forums.phoenixrising.me/index.php?threads/fluge-mellas-pre-trial-study-highlights-life-changing-potential-of-rituximab.38487/page-3#post-614647 You should find plenty of discussions on the previous...