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  1. Scarecrow

    Does anybody else walk as though they're drunk?

    I've just had some weird B12 results back. I'll be posting them in a new thread a little later on. So please look out for it if you have an interest in B12.
  2. Scarecrow

    Does anybody else walk as though they're drunk?

    I've just found my other half! That's so weird, except I'm a leftie. Do you ever feel the bad leg giving way at the knee?
  3. Scarecrow

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    I don't this means inspired by the actual patients involved in the study. At least one of those conducting the trial is recovered but was formerly severe. This same person winced visibly, when I talked about the psychosomatic model of ME being overturned.
  4. Scarecrow

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    @Sbag it's on pages 2 and 3 of the link @Trish gave. It barely qualifies as results, though. More of a sketch.
  5. Scarecrow

    Daily Mail/AfME: What can you do if you have chronic fatigue?

    I've switched to my laptop, too, and now I can't see the date either.
  6. Scarecrow

    Daily Mail/AfME: What can you do if you have chronic fatigue?

    It's in small type just under the headline. (I'm using my phone.)
  7. Scarecrow

    Protein problems

    Would an experiment with branched chain amino acids help to identify whether the problem is with protein digestion or protein synthesis?
  8. Scarecrow

    Action for ME raises concerns in Scottish Parliament

    If only doctors would actually read it.
  9. Scarecrow

    Auto-inflammatory diseases – What can they tell us about ME/CFS?

    @Woolie. If CRP and ESR are not elevated, then it can't be auto-inflammatory, is that right? If so, then it would rule out auto-inflammatory for most but by no means all of us. When you refer to feeling "sick", do you mean in a generally "malaisey" way?
  10. Scarecrow

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    I remember her. She sat at my table at the first CMRC conference three years ago. She waffled endlessly about this feasibility study and I couldn't make head nor tail what she was talking about, except that it involved visiting severe patients at home. God help them, I thought. Have a look at...
  11. Scarecrow

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    Sorry but I've only just got around to the abstract! How did the first sentence of the conclusions get past peer review? It only improves accuracy if you remove the one vital piece of the picture in clinical practice for the osteopath and the physician and they kind of allude to this in the...
  12. Scarecrow

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    More likely what sells his therapy is direct recommendations from one patient to another and the MEA treatment survey.
  13. Scarecrow

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    First of all, sorry for going back to an earlier point in the thread. It's hard to keep up. 1) and 2) would be desirable but they are not necessary. I'd be satisfied with a variation of 3), i.e. that even in the absence of biomarkers, patients can be objectively shown to improve with therapy...
  14. Scarecrow

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    OK, so perhaps he needs to rein in the claims and incorporate a disease control in future studies.
  15. Scarecrow

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    Yes, there are similarities but they're pretty superficial and there is a slight matter of scale. For the Lightning Process the total cost to become a practitioner is just shy of £8K (although exemptions are available!). Practitioners can then charge - what is it? - around £700 per person per...
  16. Scarecrow

    Can physical assessment techniques aid diagnosis in people with CFS/ME? A diagnostic accuracy study, 2017, Perrin et al

    As someone in the minority corner here, I'm going to assume this is in part aimed at me. I certainly don't feel attacked and I haven't seem anything to suggest that anyone else should either. :) Journalists edit what their interviewees tell them. There's a big distinction between saying "my...
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