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  1. erin

    Which autoantibodies would you test for?

    @Jonathan Edwards, thank you for the above post, it is very helpful.
  2. erin

    OMF/Ron Davis Research Update December 2017

    @Binkie4 I had numbness on my right leg and it was swollen but it was not cold. It felt like someone was holding my leg or it was stuck a bit. As soon as I started Ventrotex it got better and continued and even better. It is not swollen now. It also feels a bit stronger, so my leg felt weak...
  3. erin

    OMF/Ron Davis Research Update December 2017

    I hope I'm not diverting the subject. I was given Ventrotex, I believe similar to Trental? I was given this medication for my legs. They were swollen and I had pain. I responded well to this medication. I used half the dose as I'm allergic to medications in general. It gave me tachicardia a bit...
  4. erin

    Being hospitalised

    Thank you @Binkie4 for telling us your experience. And glad that it's over and done with.
  5. erin

    Which autoantibodies would you test for?

    Sorry to take your time @Jonathan Edwards, but what would be the sole purpose of measuring autoantibodies ? (in a nutshell if possible?) With the shopping basket example I had a rough idea but apart from that any other reason?
  6. erin

    Which autoantibodies would you test for?

    To start with I am not blaming anyone, not interested in blaming, I did not mention blaming immunologists or anyone. My post does not contain blaming. I was very curious about whether there is a relation between autoimmunity and ME/CFS. I am interested in this part of the conversation. So, I had...
  7. erin

    Which autoantibodies would you test for?

    In my experience, testing antibodies is always not favoured by the medical establishment in general. They see no point, even in my case of Hashimoto's they are not interested to test antibodies after the diagnosis. There is tissue malfunction in thyroid gland and now I have to supplement with...
  8. erin

    Pseudobulbar affect anyone?

    Maybe not as drastic as yours @Justy, though, I seemed to be stuck in an "emotion" and I had to think hard and control my self for the emotion has to go away. It lingers for longer than it's suppose to be. But the emotion is never strong. Actually, I seemed to be flat most of the time and when...
  9. erin

    blurry vision. Any advice welcome

    This happens to me often, especially when I'm tired. Resting helps, closing the eyes. If I could sleep it off it is great, but often it stays for 2-3 days and goes away gradually; from blurry to fuzzy and than fuzzy on the edges of the objects to complete riddance.
  10. erin

    Woman 'with ME' won world kickboxing championship

    So annoying. I hate her. Honestly I do. She's not have ME and she's misleading stupid public who are already stupid! If she really had ME no way she could do kick boxing. She probably suffered from depression and again, here, ME is reduced to moderate depression. I really wish she really have...
  11. erin

    Article: What’s worse? Doctors who believe homeopathy or just use it for placebo effect

    My UK GP, after diagnosing me with ME, told me there's nothing conventional medicine could offer me at the time (2008, nothing changed since then I guess). She asked me if I would like to try any conventional medicine and I choose homeopathy; I once paid for homeopathic treatment and it worked...
  12. erin

    Esther Crawley

    It's not important, if there was not an Esther, there would be some other opportunist so called clinician called whatever; Mary, Vivian, Rosie, Listeria, Hysteria, etc.:giggle: It's the system who employs inefficient but terribly ambitious and confident people. They will find someone that fits...
  13. erin

    Very sore and swollen ankle?

    Thanks Gingergrrl. I suffered so much while I was on Avelox, terrible sudden weird depression like symptom went away as soon as I stopped the medication. But the nausea had stayed and I've lost a stone since May.
  14. erin

    Very sore and swollen ankle?

    @Gingergrrl, I had the fluoroquinolone antibiotic in last May. I caused my gastritis and now I can't tolerate both gluten and dairy. I'm not sure the tolerances caused by this horrid antibiotic. It's 6months ago, do you think it can still cause this? Oh, I forgot to mention that the dr took an...
  15. erin

    Very sore and swollen ankle?

    Update, to be able to have an appointment with arheumatologist I have to go to my local hospital to orthopedist doctor. I went to see him. He did blood test for rheumatism and the results were negative. He also run some other tests for potassium, calcium and magnesium. Magnesium result will be...
  16. erin

    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    Nutraceutical, or neutraceutical sounds like a made up word. Is it from the Avon catalog?:p
  17. erin

    Know any Glaswegians? Help drum up people to see Unrest to meet cinema-hire target

    I'm a part time Glaswegian, though not migrated back to Glasgow yet. I normally go back end of November but not feeling great for traveling back and weather is really nice at the moment where I am. I'll try to email few friends over in Glasgow though. Is GFT not a better venue for a film like...
  18. erin

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    I pick up after 12 p.m. until 4 - 5 p.m.. I'm tired after this, I have a small peak after dinner though on good days. This usually lasts couple of hours.
  19. erin

    What is the course of your ME/CFS?

    I struggled to choose between the 2nd and the 4th. But I'm an optimist I thought the second options is maybe more appropriate in my case.
  20. erin

    Unrest available worldwide today on Vimeo and iTunes

    I felt the film would have an impact on ordinary, average people about ME. It is slightly glamorous; both Jen and Omar very good looking, highly educated and intelligent people who are very much in love. They are the not average, Jen could definitely be a hugely successful at her job but she's...
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