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  1. erin

    Pernicious Anaemia or ME - misdiagnosis concerns

    Very interesting AWNTY, I remember my blood tests and MCV is being always high but no attention payed this. I had severe ulcers in my mouth, specialists gave a spray for this and he was suspecting of Behcet's. But ulcers gone now. Well only few appears every now and then but not massive and not...
  2. erin

    Pernicious Anaemia or ME - misdiagnosis concerns

    After being diagnosed ME in 2008 I was sick and had many crashes, many blood tests, investigations, scans etc. Not sure if B12 was ever checked. In 2015 I was very dizzy and sick and hospitalized 3 a.m. Next day blood tests revealed slight anemia but very low B12. More tests done to established...
  3. erin

    What does your crash feel like?

    My crashes has been altered very slowly over the years, that my initial crash and most recent one is very different somehow. But this happened over some 13 years. My very recent crashes very like yours @Jenny TipsforME, the only difference is light does not bother me but instead I have a very...
  4. erin

    Interesting medical TV documentaries

    I watched this program last night, it was very interesting.
  5. erin

    What's in a name? Change to Ramsays?

    Gosh, first to come to my mind was Gordon Ramsay!:facepalm:
  6. erin

    Interesting medical TV documentaries

    I watched it last night. It was interesting, however I was not so convinced with MIT guys, they could make people recover memories?
  7. erin

    Keeping Up Appearances - How to look good while feeling ill

    I love it @Jenny TipsforME ! You are absolutely gorgeous and your hair is lovely. I like your hair either way. The video is very well made too.
  8. erin

    Low temperature

    Antibodies are normal, Hashimoto's is unlikely, which is good. But vitamin D is so low, really need to supplement it Wonko.
  9. erin

    Researcher Interactions Video: Science for ME Q&A with Dr José G. Montoya, 16th January 2018

    Thank you so much Andy, I will try to watch it later when I feel sharper.
  10. erin

    The Scientism of Psychiatry

    I don't get it, once psychiatrists who wanted to explain psychiatric illness scientifically failed and found anti-psychiatry movement. According to them mental illness did not existed and could not be explained and treated. I don't know what happened to the anti-psychiatry movement. It feels...
  11. erin

    Academy Award Nomination Announcements; January 23, 2018

    What a shame, an opportunity is gone out the window explaining ME properly. Jen Brea's film was perfect documentary of ME. And thank her so much for her proper attempt. She's raised some awareness by making Unrest. This is completely a divert from the subject, to raise more public awareness I...
  12. erin

    Short Synacthen Test

    I have cancelled it. I'm not feeling great recently, going to the hospital early is not something I can do nowadays. The other thing that worries me is the recent flu epidemic. I had flu last year and I ended up having pneumonia, ruined my fragile health further. After the antibiotic use I now...
  13. erin

    How do we partner with Pharma?

    Yes I know one person really close, she is my cousin. A genius, 30+ years experienced in a major pharmaceutical giant company in the research field. She's now retired but does some freelance work. I invited her here but she's kind of weary of ME. It is interesting that she never uses any...
  14. erin

    Warm brain

    This is interesting, past 3 days I feel just the opposite. I'm feeling chills in the head, totally cold air around my head and small shivers. The room that we live in is really warm. And I am wearing a woolen hat when I feel this shivers, then my head feels ok for a while. This is an going...
  15. erin

    Protest song about ME & Angel on the Water

    Politicians? They don't have minds, they are just puppets. Communicating to politicians and expecting them to serve the public is a useless pursuit. They only "look like" they are going to deliver the "goods" to the electors near the times of the elections. The system is built in such way that...
  16. erin

    Protest song about ME & Angel on the Water

    Oh my, absolutely beautiful song @Robert 1973 .
  17. erin

    Pinched Nerve in Neck...help!

    Both pinched nerve and bad back too much to cope @LucyLouWho, sorry you have both. I hope the pain goes away soon. I don't know what to suggest, just adding a link, it is posted recently in this forum, not sure if it helps...
  18. erin

    How do we partner with Pharma?

    I still find it hard to believe that the pharma is interested in finding a medicine that will cure a disease like ME, even after reading what you wrote here. I'm not quite sure hepatitis C is a disease like ME. First of all, is ME really only and solely caused by a virus and an anti-viral...
  19. erin

    How do we partner with Pharma?

    I find it hard to believe that the pharma is interested in finding a medicine that will cure a disease like ME. They are much better off selling many painkillers, digestive aids, tranquillizers, mood stabilizers etc. And that's whats happening at the moment, they are happy with it. It's good...
  20. erin

    Low temperature

    Well done @Wonko for getting the tests done, so glad that it was easy and no probs. Good news about the warm home discount, finally you've sorted this too. 14 days is a very long wait for the results, but the tests you are describing is more than what I get usual. Mine is out within a week...
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