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    More Objections to Chronic Lyme Patients

    Thank Duncan for your posts on Lyme disease. The mention of MUS definitely has alarm bells ringing. I don't have a science background but I do not find anything in the abstract what I would consider to be scientific. The conclusion is unadulterated wishful thinking with regard to bundling...
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    Reading all this is so disheartening. I had begun to think that we might be moving beyond this. And then here she comes again. How are they getting the young people for this study. I feel sorry for them, their parents and for all of us. There is huge manipulation going on and it is very...
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    BMJ Peer review of Wilshire et al re-analysis of PACE paper

    I find it hard to believe that the BMJ would publish such waffle and that they would expect people to wade through it is unreal. I find it hard to believe that one of their staff read this and decided to publish it. This deserves all the attention it can get and for all the wrong reasons.
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    Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease, Middelveen et al, 2018

    Thanks Duncan, I have been diagnosed with both,by different doctors. I see many in my Lyme group responding differently to the abx. Many are able to go out regularly and don't seem to have the same level of PEM. Some are even back at work. I'm totally housebound , hours in bed daily and can do...
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    Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease, Middelveen et al, 2018

    This is all very interesting to me. Finished 18 months of abx a year ago, gut issues and joint issues are greatly resolved but fatigue and sore throats etc are relentless and crushing. Has anyone any info on how you would know if you had ME Cfs as well as the Lyme. Thanks for posting the...
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    Not ME : One of Britain’s leading universities embroiled in major research scandal

    How I'd love to see same for another university and a different cast of actors. I hope it will come
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    David Tuller Crowdfunding over $75k

    I' m so delighted that the fund has reached this level. I can breathe again!. It would be great if it keeps growing for the last few days. It is so good to have him on board for another year. I really admire his tenacity and fearlessness in the face of the Pace weasels.
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    I'm going to make a second donation also. I was waiting just in case there was an offer to double the donation made by anyone as happened last year. It is getting a bit late now but this would be a good time for it to happen. Hopefully the fund will be very busy this week there are only 7days...
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    David Tuller's new crowdfunding campaign (April 1, 2018)

    Brilliant to see everyone donating, just on my own behalf as a patient, thanks all of you. This feels so important for all of us. Looks like there are 500 donations less than last year even though he is doing well. I would feel a lot of those people just know the campaign is happening. Maybe we...
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    Hidden disease in the spot light in York: more about Myalgic Encephalomyelitis (M.E.)

    Thanks for posting their email address and for this thread. I will contact them and maybe others would also.Hopefully LIb Dems will be open to suggestions.
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    Hidden disease in the spot light in York: more about Myalgic Encephalomyelitis (M.E.)

    I think this kind of awareness is the very last thing we need. It' s the only kind we have had on this side of the Atlantic,and it has been disastrous. If the Lib. Dems.want to raise awareness they should do a bit of research and maybe work on bringing the truth into the public domain. That...
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    Anyone has a stair lift at home ? (Moving, part II)

    We have a stair lift, it has made a huge difference to us, it is so good to go upstairs at will. I wouldn' t hesitate to go with this option. I should have done it years ago. Best of luck with your decision.
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    David Tuller - Trial By Error: News About My Plans

    So good to hear. You have kept hammering away and we are seeing the results.Esther has vacated her place on CMRC. I'm delighted that you are getting results and coming back into the fray for another bout.Huge thanks to you for your tenacity and wishing you satisfaction and success in all...
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    School sends home sick asthmatic 5y/o, then bans him from Xmas party for ‘poor attendance’

    This disgusts me completely. Even if this child had been absent without ever having been sick his attendance at school is not under his own control.to To ban any child is ludicrous. To punish a sick child in this way is beyond comprehension.people. people with such low levels of basic...
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