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This was exactly my thought. I didn't say anything about him yesterday because I was afraid of stoking the fire. I think the minister played this up intentionally to deflect attention as it would be more newsworthy, and seems to have worked. Any thoughts on requesting anything from Rickey...

Given a lot of people conflate the two terms or use them interchangeably, Sharpe is really just clutching at straws.

I agree with you about @Cheshire 's argument. Also agree that boom and bust is completely at odds with fear avoidance. But just to say also, the "boom and bust" model also only exists in the wild imagination of the PACE PIs minds. There is no Boom, just the bust after any over exertion.

Is the editorial the same as the commentary or are they different things? ETA :

Just wondering, is there a reason there is a specific fundraiser for a UK organiser? Could this not be funded from a central MEAction fund or a general fundraiser? The reason I ask is, it is likely only UK patients will donate to this, yet from what I gather the UK already is on a par with the...

Is this the person Sharp was claiming was independently choosen ? Or am I getting mixed up.

Wow. Did we know this? Bit like choosing your buddies to mark your homework.

:thumbup::laugh:

Great response it is.

I don't think anyone was being put off, however it seems this is a bigger (and maybe more interesting) discussion and might worth starting a new thread to discuss this merits of advocacy vs research donations ?

Of course it was. There is no doubt about this. It's a victory that they have been given the boot. Personally I wouldn't bother complaining about the wording of letters etc. or even looking for more answers regarding SMCs involvement, it's already all been well documented and now we should take...

I would agree with that. The problem was not of our own creating and it doesn't help when we have to go up against the machine of the SMC. Has any thought been put into hiring a PR agency ? Now that the SMC seems to have got the boot form CMRC maybe there is an opportunity to get a different...

Would you have links to those papers?

It does read to be a bit underhanded though - are you sure the doubt is inappropriate? If what is implied is true, I can understand where iimer are coming from. Sounds like some people piggy backed iimerc having previously ignored them, and now plan to steal a bit of thunder. I guess we'll...

I think engagement is always good. I appreciate you are all busy but it might be worth considering having a thread on here with regular updates of your work, you'll be guaranteed to get some feedback, if nothing else. Personally it's been a while now since I visited the MEAction website, but I...

Reducing the p value means being more certain the results are not by chance. I don't think anyone would advocate "boiling it down" to a binary decision based on p value alone, but maybe some people do this. Also, I would have thought it goes without saying that inference should be based on...

You or anyone could email Nath. He said they do their best to reply to every email.

Yes i did ask them about this and they said they were working with charities and organisations. They also said anyone in the world can apply to take part.

I spoke to Nath and Wallit about the slow pace of the study and they said the reason was that they couldn't get enough patients and that a lot of them turn out to not have ME. They didn't give a figure though, nor did they elaborate. It did strike me as very odd and made me wonder how all the...

I was sitting down having my lunch and Ingrid Rekeland walked by, so i jumped up and stopped her in her tracks and pestered her until she divulged some information. She said they are a lot more cautious now after the ritux trial, but she still thinks it possible that cyclo was the main drug...