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    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Regardless of ME being an umbrella or not, that shouldn't restrict his view that the science surround PACE has been awful and that patients are justified in complaining.
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    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    My impression is that Colquhoun is not our friend. When I tried to get his attention in the past about trialling video games for ME he replied along the lines of why not, nobody knows what ME is so may as well try anything. He has repeatedly declined to enter the debate about poor science in...
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    University Times, An Unhealthy Mind can lead to an Unhealthy Brain (2019) Tadjine

    I'm from Ireland, but I'll follow up! :) (it's a actually quite funny to hear the term Éire, because nobody in Ireland ever calls it that, except if we were speaking Irish, which we never do, despite it being our national language, but I digress ..)
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    Cochrane Exercise Review Withdrawn - Individual Patient Data

    So does that mean there is every reason to think it will never be withdrawn?
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    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    You know the way people complain when this group publicise and hype their findings - now you can see why they do it.
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    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    I know nothing about this but I would speculate they did some tests and found some unusual results. So then they decided to formalise their testing by doing this small but official study. So I would say for what it is, it is not unusually small. You have to start somewhere and this seems to be...
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    Your OMF gift tripled this week!

    Well 3000 of them at most! Using the figure of 3000 then I think not enough is coming from the ME community. I can understand all the reasons why people may not donate but if they don't donate when their money will be tripled then I think something needs improving. (from within the ME community )
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    Your OMF gift tripled this week!

    $1.5M from 32 countries is amazing. But 3000 donors is a bit disappointing.
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    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    Withdrawn might be the wrong word but it sounds to me like it's not going to go back up. They have said they did not approve publication of the resubmission. So is the net effect of that a withdrawal?
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    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    They've withdrawn it but the wording makes it sound like there were a few issues, and well, its out of date now anyway so let's just move along. . Why on earth would they talk to the author team when theh have demonstrated that they don't have the ability to carry out a review to the required...
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    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    This is interesting. I wonder what a recovering patient is defined as - someone who was severe and now moderate or moderate and now mild or just any mild patient, or any patient who says they are better? Also wonder if recovering patients had no differences or just less differences. Also...
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    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    I vaguely remember him talking about the size of the microfluidic device and saying he needed a different size. But again, I don't know if that was before or after this study.
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    Cochrane ME/CFS GET review temporarily withdrawn

    Were they hoping that by leaking the news it would pressurise whoever was chosen to do the peer review, to accept it? Any chance they might ask you to review?
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    Institutions protecting perpetrators

    10 Years ago a police Sergeant in Ireland raised concerns about other policemen. What happened after that is scarely believable. The commisioner of the police force was involved in a smear campaign against this sergeant which included spreading rumours that he sexually abused members of his...
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    CDC Roundtable, Multisite Study and Dr. Klimas’ Attempt to Permanently “Reset” Chronic Fatigue Syndrome (ME/CFS)

    Fluge and Mella tried etanercept before and halted the trial very early due to worsening of some the initial patients. Would be interesting to see if anyone else has data on etanercept. (enbrel) It's a common drug for RA so should be plenty of ME patients on it.
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    Watt from MRC defends PACE in letter to Times

    Was this in private correspondence or do you have anything specific to point to that demonstrates Cochrane may have been worried about the standard ? (apart from the apology about mental health) Do you think they may be worried enough to do something
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    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    It's just missing the Hans Eysenck warning on the cigarette pack saying smoking doesn't cause cancer.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    I don't see how it could be considered a patient is choice, no more than lactose intolerance doesn't imply someone choose to be intolerant to lactose. But I guess there is a lot of sensitivity around names. Going by what I see on twitter sometimes, I think some people think the IOM report and...
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