Technically the PACE authors could be classified as endangered species, they are a rare breed afterall.
The data might spell an end to their era of lies, deception and pseudoscience.
This does make sense, but I am very sceptical of petitions at this stage.
I have lost count how many there have been over the last few years alone and none of them seen to have any effect.
The anti MEGA one is probably the exception, and was warranted mainly because we needed to refute the Pro...
It's particular good because of the explanation @Jonathan Edwards gives regarding subjective outcomes and blinding. I'm glad the journalist kept all that in the article.
Also nice that they left in this bit about PACE :
Since when has autobiographical memory been crucial for goal attainment and even if it was, what has that got to do with coping with a chronic illness?
WTF is this nonsense.
I think it has to do with getting donations.
The OMF need to let people know that things are happening, and research is "finding things" but at the same time, Ron doesn't have enough to publish by the sounds of it.
So the videos help keep patients interested enough to continue donating.
I think the editing was a bit messed up in Maureen Hansons talk.
Will be interesting to see results of her latest work, she mentioned working with metabolon so hopefully they will be comparable with Ron Davis'results.
Vicky Wittemores talk was encouraging but the proof will be if that upward...
Maybe the lack of NIH funding made him think it's worth the effort even if he thinks it might slow him down.
Also, maybe a lot of his work was exploratory till now so not much to publish, but if they are focusing more on specific items it might lead itself to publishing.
I thought that was odd too.
I did just enter some random text for my name and randomtext@randomtext.com for my email and it let me watch it.
I am already on their mailing list anyway.
Just watched, good update, mainly focused on the nanoneedle.
Seems like they have plans to do a lot more testing using this.
Also notable he mentioned they would begin publishing soon.
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