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    Nature: A reboot for chronic fatigue syndrome research

    Wow, that was great article, managed to cover just about everything and no mention of yuppie flu or harassment. Perhaps we are making progress.
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    Blog: "The PACE PLOS One data will not be released and the article won’t be retracted", James Coyne

    Technically the PACE authors could be classified as endangered species, they are a rare breed afterall. The data might spell an end to their era of lies, deception and pseudoscience.
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    Jen Brea comments on Esther Crawley's behaviour

    This does make sense, but I am very sceptical of petitions at this stage. I have lost count how many there have been over the last few years alone and none of them seen to have any effect. The anti MEGA one is probably the exception, and was warranted mainly because we needed to refute the Pro...
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    Jennifer Brea in Boston Globe December 27, 2017

    Julie seems to be adding weight to the feminist angle :
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    Buzzfeed News - A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience

    It's particular good because of the explanation @Jonathan Edwards gives regarding subjective outcomes and blinding. I'm glad the journalist kept all that in the article. Also nice that they left in this bit about PACE :
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    Jennifer Brea in Boston Globe December 27, 2017

    Jen seems to be focusing on the sexism aspect more in this article than in others.
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    Book due out: "Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick by Maya Dusenbery"

    And don't forget to propose two conflicting hypothesis, you know just to cover all bases.
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    Greater specificity of activity memories in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (2017) Maryanne Martin

    Since when has autobiographical memory been crucial for goal attainment and even if it was, what has that got to do with coping with a chronic illness? WTF is this nonsense.
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    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    I think it has to do with getting donations. The OMF need to let people know that things are happening, and research is "finding things" but at the same time, Ron doesn't have enough to publish by the sounds of it. So the videos help keep patients interested enough to continue donating.
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    NICE are looking for a chair for the ME/CFS guideline committee

    Yes, I was just thinking that it couldn't be reasonably interpreted as prejudicial to an objective interpretation of the evidence.
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    NICE are looking for a chair for the ME/CFS guideline committee

    Which rule would exclude you specifically?
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    Presentation Summaries from Solve ME/CFS Discovery Forum October 2017

    I think the editing was a bit messed up in Maureen Hansons talk. Will be interesting to see results of her latest work, she mentioned working with metabolon so hopefully they will be comparable with Ron Davis'results. Vicky Wittemores talk was encouraging but the proof will be if that upward...
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    OMF/Ron Davis Research Update December 2017

    Maybe the lack of NIH funding made him think it's worth the effort even if he thinks it might slow him down. Also, maybe a lot of his work was exploratory till now so not much to publish, but if they are focusing more on specific items it might lead itself to publishing.
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    OMF/Ron Davis Research Update December 2017

    To try to get more people on their site and to harness email addresses for their newsletter. (I guess)
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    OMF/Ron Davis Research Update December 2017

    I thought that was odd too. I did just enter some random text for my name and randomtext@randomtext.com for my email and it let me watch it. I am already on their mailing list anyway.
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    OMF/Ron Davis Research Update December 2017

    Just watched, good update, mainly focused on the nanoneedle. Seems like they have plans to do a lot more testing using this. Also notable he mentioned they would begin publishing soon.
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