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Yes. I can't remember all the details, so this could be technically nonsense. But they compared / profiled ME to something like 83,000 different "illnesses" and the most comparable was trypanosome infection or African sleeping sickness. I think it was some form of genetic profile but I could be...

I was sitting beside Emma, she didn't stop writing notes all day, I don't know how she kept up.

I'll try to put some thoughts together when I get a chance. For now - It was interesting without learning anything too new. The biggest take-home message is probably just the amount of research work going on now. But I think we are still a bit away from any Eureka moment. Ron Davis'...

The referendum in ireland was carried because of one persons story. (mainly). Unfortunately it took the loss of Savita Halappanavar's life to make people realise what exactly was going on. I think we need a watershed moment too. I am not sure if hundreds or more personal stories make a...

Are you still involved with Iime ?

It sounds like Charles isn't on the right page. Has he joined here yet or I wonder how we could engage with him to see things clearer.

This is worrying. Is there any way to get the patient groups to agree what the main goal is here and fight for that rather than jeopardise everything ?

It's an impressive list!

I don't see why they have to. Most other diseases can be diagnosed seperatly, so there should be no confusion.

I hope someone can interpret this :)

I'd forget all about PACE, the goal is more research money. Just ask him why he doesn't fund ME research commensurate with the burden of the disease.

Exactly what I was thinking, he does seem to have lost it.

I say the following without any specialist knowledge of this area. I would doubt there is any law against emailing someone. I would be even more doubtful, if that person already gave you their email address. The main issue i think, is data protection and ensuring you don't give personal data...

Yes, but there is a difference if you have already nailed your colours to the mast prior to the trial. It might be how the system works but you didn't explain why that doesn't mean it's a conflict of interest. I am not talking about publishing a no. of papers per se, I am talking about...

But if you stand to gain financially, whether indirectly by career advancement or directly via payments, depending on if the result is one or the other, then isn't that a conflict of interest when you are a principal investigator, and essentially calling the shots.

Absolutely not !

I think the nature and tone of the tweets were odd, but sone people like to vent on twitter I guess. The strange thing for me in all this is that there seem to be significantly more UK people interested in Unrest than US people.(edit :in %) So, on one hand you could say the money is better...

I hope @JenB can explain in a bit more detail here what the conclusions are based on. I would have expected there to be cultural and technological differences between UK and US, which could account for some of the difference in figures. Also, was the impact of the piracy only limited to the...

I am sure there are movie buffs who would watch anything for free :)