I’m not sure if this has been posted. Interview with Wessely at 34 mins 39. Talking about his work on the mental health act
“I’d learned quite a lot over the years, and I’d learned about what happens if you don’t really push from day 1, engagement, PPIE, whatever you want to call it, so we...
I’ve just checked and it’s getting about 1200 views a day atm. Looks like the algorithm has picked it up again. I think it was getting about 300 before.
Did anyone manage to record the discussion about Decode on Sky - Press preview? Would really appreciate a copy, even if it’s just a recording of a TV using a phone camera.
Thanks
Edited version of BBC 5 Live’s Nicky Campbell phone-in (53 mins) on the DecodeME results. Professor Chris Ponting explains the findings, and callers share how stigma, misdiagnosis, and severe illness have shaped their lives with #MECFS.
BBC Radio 4’s Today reports on the results of the DecodeME study. Professor Chris Ponting says the largest genetic study of MECFS reveals eight DNA regions linked to the disease. 19-year-old Lucy describes years of not being believed.
Channel 4 News – full segment on DecodeME results (9 mins) — the world’s largest genetic study of #MECFS — identifies eight genetic difference. Includes interviews with Prof Chris Ponting, a patient participant, Sonia Chowdhury, and MP Tessa Munt.
Isla was featured in the File on 4 episode about children with ME
Link to the program
https://www.bbc.co.uk/programmes/b08vyly5
Linked to the transcript
http://news.bbc.co.uk/1/shared/bsp/hi/pdfs/27_06_17_fo4_childrenwithme.pdf
"There have been medically motivated attacks in the past: psychiatrists working on chronic fatigue in the UK received death threats in 2011, and in 2022 a doctor in Tulsa was shot by a patient with back pain."
https://www.spectator.co.uk/article/are-you-in-chronicpain/
New from Margaret Williams
“Over the past few weeks, “Margaret Williams” (a pseudonym) has been working on a detailed exposé concerning Professor Sir Simon Wessely. Many of you will be familiar with her previous work, often co-authored with Professor Malcolm Hooper.
A small group of us has...
Thanks Rainbow Cloud, much appreciated.
I’ve also created a trailer for that video which I’ve just put on YouTube shorts.
https://youtube.com/shorts/E8sym7aPcZc?si=kjJSjrGni7Y55rO3
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