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  1. Adam pwme

    Who is Simon Wessely?

    I’m not sure if this has been posted. Interview with Wessely at 34 mins 39. Talking about his work on the mental health act “I’d learned quite a lot over the years, and I’d learned about what happens if you don’t really push from day 1, engagement, PPIE, whatever you want to call it, so we...
  2. Adam pwme

    Well-known, famous people with ME/CFS (public thread)

    It’s not my kind of music, but the band seem to be doing quite well as they were nominated for a MOBO. This is them on Jools Holland.
  3. Adam pwme

    New Video ME/CFS Scandal Explainer

    I’ve just checked and it’s getting about 1200 views a day atm. Looks like the algorithm has picked it up again. I think it was getting about 300 before.
  4. Adam pwme

    Heathrow incident 8/9/25 claimed to be mass psychogenic illness

    Posts moved from Who is Simon Wessely? ---------------------------------------------------
  5. Adam pwme

    DecodeME in the media

    Did anyone manage to record the discussion about Decode on Sky - Press preview? Would really appreciate a copy, even if it’s just a recording of a TV using a phone camera. Thanks
  6. Adam pwme

    DecodeME in the media

    Edited version of BBC 5 Live’s Nicky Campbell phone-in (53 mins) on the DecodeME results. Professor Chris Ponting explains the findings, and callers share how stigma, misdiagnosis, and severe illness have shaped their lives with #MECFS.
  7. Adam pwme

    DecodeME in the media

    BBC Radio 4’s Today reports on the results of the DecodeME study. Professor Chris Ponting says the largest genetic study of MECFS reveals eight DNA regions linked to the disease. 19-year-old Lucy describes years of not being believed.
  8. Adam pwme

    DecodeME in the media

    Channel 4 News – full segment on DecodeME results (9 mins) — the world’s largest genetic study of #MECFS — identifies eight genetic difference. Includes interviews with Prof Chris Ponting, a patient participant, Sonia Chowdhury, and MP Tessa Munt.
  9. Adam pwme

    Isla Kidd and her family

    Isla was featured in the File on 4 episode about children with ME Link to the program https://www.bbc.co.uk/programmes/b08vyly5 Linked to the transcript http://news.bbc.co.uk/1/shared/bsp/hi/pdfs/27_06_17_fo4_childrenwithme.pdf
  10. Adam pwme

    New article in the spectator mentions ME/CFS and death threats.

    "There have been medically motivated attacks in the past: psychiatrists working on chronic fatigue in the UK received death threats in 2011, and in 2022 a doctor in Tulsa was shot by a patient with back pain." https://www.spectator.co.uk/article/are-you-in-chronicpain/
  11. Adam pwme

    Who is Simon Wessely?

    New from Margaret Williams “Over the past few weeks, “Margaret Williams” (a pseudonym) has been working on a detailed exposé concerning Professor Sir Simon Wessely. Many of you will be familiar with her previous work, often co-authored with Professor Malcolm Hooper. A small group of us has...
  12. Adam pwme

    Attention grabbing media for spreading ME/CFS awareness

    Thanks Rainbow Cloud, much appreciated. I’ve also created a trailer for that video which I’ve just put on YouTube shorts. https://youtube.com/shorts/E8sym7aPcZc?si=kjJSjrGni7Y55rO3
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