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Agree. Too bad after all good publicity lately. I checked with some people, and to them like to me it was evident that this newspaper just wanted another angle as they were late on the scene. I let the journalist know our opinions and that we clearly could see her hunt for klicks at the expense...

Thanks @Kalliope . Actually, the full section is available here at 23:00 - 32:40. Unfortunally, due to sending rights during the Olympic Games, it is only possibly to watch in Sweden. I think this section contains exactly what we all want to inform about ME and the situation for PWME. The...

Finally... :thumbup: I have no words :party: @Jonas Blomberg, thank you so much for all your work for us!

@Kalliope, good points that you summarized from the interview. And as you say, finally media and people are taking ME seriously here. We have now reached the point of no return, and we can proceed with discussions about how patients should be handled and helped. I hope the interest in ME now...

Do you know if the Ubiome test is using the same analyze technique as is used in the analyze of the MSA test from R.E.D. labs that KDM requests? Presented in this study. I couldn´t find out what Ubiome is using from their homepage.

And just now it´s another discussion on the radio about the ME scandal in the popular radio show "Nordegren and Epstein" on channel 1. It ends with a discussion about "how medical students are taught to treat patients with ME/CFS as there are diverging opinions about what to do". " How much do...

More about ME/CFS in Swedish media. Next Monday, February, 26th, the well-known author Karin Alvtegen will be interviewed about her ME/CFS in the TV show "Ask the Doctor" (Fråga Doktorn) at 6.45 pm. Karin Alvtegen has kindly, although getting severe PEM afterwards, admitted to several...

I´m very happy to see that from today Jonas Blomberg is a member of the forum.

@Liv aka Mrs Sowester @Valentijn @Andy or anyone, are we allowed to post translations like the following? The interview with ME-patient Anki Johanssson from to the link in the first post translated by Google: "The only thing I was thinking of in three years is this damn disease" ME-sick Anki...

I don´t know if there are any here, but JES is on PR and also Maija Haavisto used to be there. Here is her twitter if anyone with an account would like to invite her https://twitter.com/diamondie

"Full-text options contact us if you wish to discuss making the full text publicly available." https://otago.ourarchive.ac.nz/handle/10523/7834?show=full

I was one of those who were excited at that time as Eric Schadt was conducting a study about a possible genetic cause of ME. Nielk, member on PR as well as another member, wrote about their participating in the study. It would be interesting to get that study commented as well. OMG. Do I dare...

@Amw66, I´ve been through all stages of cortisol levels from almost any (serum cortisol 6 (200-800)) to unmeasurably high. I would contact your daughter´s doctor and tell about her new symptoms that aren´t common while on cortisone treatment. Low hormone levels are common among PWME and some...

@Sly Saint , Dr. Derek Enlander is a member of PR forum and has replied to questions there. Nielk, is one of his patients, or at least she was. Maybe you could get a comment from any of them.

From Twitter: Maureen Hanson‏ @DrMaureenHanson Our 2017 publication of a pilot metabolite study in ME/CFS is now freely available, open access, at PubMed Central https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5365380/ …

Agree, but it could be caused by low cortisol, that also is common, so I think blood sugar should be tested together with a saliva cortisol test ( more reliable than serum cortisol).

Some of you might recall that Professor and immunochemist Anders Rosén got interested in ME/CFS after his retirement, when Prof. Jonas Blomberg introduced him to the disease. He was one of the speakers at a ME seminar in Sweden 2016. Happy to have him working for us. About the latest study in...

Maureen Hanson‏ @DrMaureenHanson ME/CFS patients feel like their circadian clocks are disrupted. https://tinyurl.com/y7oodfo4 . More research needed to find out why. 18:52 - 2 okt. 2017

Hi Arnie Pye, Sorry to hear about your struggles with sleep. I came across this video yesterday and thought it describes many PWME´s situation, including mine, quite well. The disturbance of cortisol release seems to be the cause of how our sleep pattern ends up. There is no simple solution but...

And tomorrow the Minister of Health will be interviewed on the same channel, TV4, in the morning. As we will have an election in September, I think the authorities have to handle ME/CFS seriously from now on.