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@TrixieStix - I hope this potential diagnosis leads you to appropriate treatment. It can explain so many issues you've had.

But could effectiveness be measured pre- and post-treatment using a CPET?

Fascinating research you've posted. No, I don't know of current studies, but I was on it for two years as a teenager and I've wondered if its effects contributed to the later development of my current illness.

Well, if researchers don't figure subtypes out soon, one day we'll be called "ME/CFS Spectrum Disorder."

I was crushed by this news this morning. What is clear (to me) is that this disease is ill-defined and we are lumped together under the umbrella of "ME/CFS." We are different. Fluge & Mella may publish a paper that in fact helps a percentage of people to so that they do not receive an ME/CFS...

The current NIH Intra-Mural study is comparing controls to an ME/CFS group and a post-Lyme group. Sample sizes are not great (I believe 20 each), but they are looking deep and biological...i.e., not just questionnaires. Just as Gulf War Illness is proving to be a different beast, post-Lyme is...

Hmm...did the PACE trials discuss provider transference? I suppose we should be greatful that he gave us attention? This was a gutless interview. His legacy is doomed, enough said.

Wow...this sort of behavioral modification sounds like a cult influence. We are isolated enough. I'm sorry you lost a friend and I'm sorry your friend relapsed despite so much will and effort to get better.

So true. The world is full of people trying to commit themselves to other's truths. I don't bother debating with someone who wants to believe in certain things, for themselves. My sticking point comes when they try to force their belief on me. Of course, many sick people are vulnerable...

@Trish - Thank you for sharing. I live in a mecca for alternative therapy and everyone knows just what therapy one should be doing to heal. When I first learned of many basic supportive therapies ME/CFS, it was hard for me to decide what was legitimate and what was based on "belief." Some...

I think these sorts of therapies can be situationally helpful for someone who is mild and suggestible. If you are generally a skeptic (only comforted by hard science) and dealing with extreme consequences of this illness, it's likely rubbish and possibly damaging when one cannot "think" and...

Hmm...I'd love for ME/CFS to get a Liz Taylor-status celebrity to make fundraising for this disease their personal mission.

Right? Another book about M.E. and no audio version. I'm going to have my husband read it to me. I miss reading :(

Subcutaneous injection of 5,000 mcg every three days of methylcobalamin.

Same. I have some friends in the medical profession. I'd like to read how she portrays it and pass it along if I think it represents our situation well.

Great reviews on Amazon. Just ordered it.

I just tested positive for echovirus 30 from ARUP Labs and have been reading up a bit (as we do with any lead...). It seems that enteroviruses have been implicated in diabetes: http://news.bbc.co.uk/2/hi/health/7926026.stm There is also a link to myocarditis and pericarditis according to...

Yes, I've had nights where I have insomnia, wake up early, and buzz all day. I also have stretches of hypersomnia, sleeping 10 hours followed by naps. So far I have not determined any rhyme or reason to the pattern.