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@JaimeS - If you get a chance to speak with an organizer, can you find out when they expect the videos of this conference to be posted and let us know? These talks clearly have a lot depth and information to digest. I hope it helps many people get to the bottom of their symptoms and can lead to...

@Woolie - I'm glad you brought up cimetidine. This was the first treatment I tried when I was very ill that brought me some relief. I read about it on PR. When I started seeing Dr. Chheda, she didn't want me taking it because it uses the P450 enzymatic pathway (hope I'm getting that right)...

I really wanted to go, but wasn't well enough a month ago to make plans. I have a local friend with ME who wants to attend next year together. Please tell me that you and Beth are wearing MEAction t-shirts! I share your suspicion that there are POTS patients who are ME, but only diagnosed...

So far, it seems that Klimas is the researcher who has looked into our aerobic threshold issue more than anyone other than Workwell. I exercise a bit by lifting weights while seated on the floor during my best time of day. Recumbent bike or otherwise remaining supine, the problem is not just...

There appears to have been one speaker from Mayo advocating for this. It's one of the reasons more collaboration with the ME/CFS community would be good because we are POTS patients too, but certainly do not benefit from exercise. It's strange that a professional in the field would not even...

Yes, Carmen Scheibenbogen would be a great addition to their speaker line up.

@JaimeS - Any sense as to why ME/CFS researchers are not presenting at this conference? Or, is one on the agenda? I haven't been able to find the list of speakers. With so much overlap between these conditions, it would be awesome if Dysautonomia International formally brought ME/CFS into the...

Good article, but too conservative! The fact is...it's a popularity contest. Big labs and big names are rewarded by their peers who sit on the selection committees. It's an entrenched system. I'm all for an initial vetting process that then selects based on a lottery system. Perhaps a...

The Dysautonomia International Conference 2018 is taking place this weekend (June 23-24) in Nashville, TN. Cort Johnson and MEAction have been sending out live tweets from the conference. There has been a lot of exciting information related to POTS, EDS, MCAS, and Fibromyalgia. As we know...

I'm interested if she documents any mistreatment.

Not an expert in this realm, and I've never studied English law, however our system in the US is based on English law. The foundation of any defamation action is that the statements were false. Therefore, if the statements are true, there is no defamation. It seems to me, CM was only...

Is there no requirement to prove damages in the UK?

It was difficult to listen to the public comment today. After Ben HsuBorger (?) from MEAction spoke, Amrit made a very stupid comment reprimanding ME non-profits for not working together and making too many demands. I was shocked because MillionsMissing just happened, followed by a huge...

Thank you for posting this video @Joh. It's one of the best interviews and explanations of the experience of this illness that I've seen. Ashanti is sitting up and engaged throughout the interview, surely she paid heavily for it days afterwards. She reiterates time and again that "fatigue" is...

Dr. Younger spoke about this last year on a YouTube video. I was curious about the status as he hasn't posted anything in a long while. Exciting to see that he has received funding from a UK organization. It's great to see funds being exchanged both ways across the water to fund necessary...

"In science, too often, the first demonstration of an idea becomes the lasting one — in both pop culture and academia. But this isn’t how science is supposed to work at all!"

Apropos.

@B_V - Your story is an amazing one. My husband and I are both lawyers and we constantly see how insurance companies shirk responsibility and blame patients. Your case and your sharing this information will help others. Kudos to you and your team at Barbara Comerford & Associates. If feels...

@ME/CFS - Thank you for contributing to this thread. I'm interested in learning about your follow up work with sodium dichloroacetate. I see that it is also being investigated as a treatment for Leigh's Syndrome to treat lactic acidosis. ETA: Looks like sometimes referred to as "Leigh's...

Bump...happening today, in one hour.