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Would be great if it is but I can't see anything, bar the words white paper which are in quotation marks, that implies this. It looks more think tank like to me - studying disability and welfare. Still could be an interesting project, I haven't taken the survey yet but shall do when energy allows.

Very sorry to hear of this experience @Shinygleamy. Would agree with everything @Kirsten has said. It is absolutely not the case that CFS or ME are no longer being diagnosed - you are totally within your right to get a second opinion and choose never to see that GP again. Hope the benefits...

Our article at #MEAction on this. A culmination of many pressure points leading to this I would say. https://www.meaction.net/2020/07/11/graded-exercise-therapy-not-recommended-for-post-covid-fatigue-say-nice/ And tweet:

I think those questions were taken from the DePaul symptom questionnaire - hence the language used. Thanks all for trying.

Oops my bad!! Thanks @Mij - hopefully fixed!

A family friend is doing her Masters dissertation on nutrition in ME, and so has put together a short survey that she would be grateful if people could fill in. She has (independently of me) started to look into and been shocked by the research into ME and the stigma our community faces, hence...

I'll raise it, thanks for the tag, but honestly doubt it. Reports of positive experiences with GPs in Sheffield are few and far between. And tbh I think it's a weird role. I hear the lead therapist may be retiring some time too, which could lead to quite the change in the service. Let's hope...

Sheffield groups thread about this if anyone fancies retweeting!

To wind down after an intense #MEAwarenessWeek and #MillionsMissing - Sheffield ME & Fibromyalgia Group are putting on a LIVE MUSIC FESTIVAL Watch now There's a whole lineup of musicians, including people with ME, playing until 10 pm this eve! And a massive thank you to Harriet Rose for...

Gutted that due to technical difficulties the #MEAction UK #MillionsMissing livestream couldn't work today, but we went ahead and recorded it anyhow, it's now up on facebook so get watching: I think there's some super powerful parts in it, and am so grateful to all the speakers who joined us...

Not sure anyone has posted this here yet, sooo: #MEAction UK have a live event from 4-6pm on Tuesday 12th (tomorrow!!) We've got speakers including: Professor Chris Ponting Stuart Murdoch from Belle and Sebastian Dr Nina Muirhead Carol Monaghan MP David Green (Director of the Florence...

Thank you all so much for such positive feedback Totally agree! So tricky when the submissions were of such varying quality. If you could listen to the originals you could tell what an impressive job our editor Ross did to get it to this point. We're really trying to get people to watch the...

#MEAction UK and #MEAction Scotland have created a film for #MillionsMissing this year. Really grateful to be able to include expert testimony from Professor Chris Ponting and Dr Nina Muirhead, and for the many video submissions from people with ME. It was both fun, challenging and deeply...

Yes my mum has had suspected covid. She is in week 7 now since symptoms started and experiencing the up and down slow recovery many are reporting, although overall does seem to be improving thankfully. I don't appear to have caught it. She spent a week isolated in her bedroom once symptoms...

Got it up on YouTube too now: And I will see if we can pass along those questions to Simon @Robert 1973

Starting live now! Join us on zoom https://zoom.us/j/94057622868?pwd=b0xyeWxCcGtXZ1l6b0dkbVNpM3JHdz09 Or watch on Facebook live: Feel free to drop questions in the zoom chat, the Facebook chat, or here and we'll try to ask Simon. I'll upload to YouTube after the talk.

Both on Facebook and YouTube yes :)

Cheers for posting this @Slysaint - I had been meaning to!

Possibly still too complex but there are some phones designed for the elderly such as this one: https://www.techsilver.co.uk/product/easy-smartphone-elderly/ If it's set up for them, they were told how to turn it off and on, and had instructions, then picking up a WhatsApp video call might be...

We're live now, join us and David Tuller as he discusses his work around Medically Unexplained Symptoms. To join the Zoom call with your computer, tablet or mobile phone online (you will need to download the Zoom app on tablet or mobile) click here: https://zoom.us/j/600588922 OR You can...