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I can't be sure what additional risks vaccines present to people with ME/CFS. It does seem clear to me (even via personal experience) that things that don't have big consequences for healthy people can affect us (and me) very badly. But a concern remains that the anti-vax movement in the...

I think this study is spot-on. There is no link between the HPV vaccine and ME/CFS. HPV causes many fatalities in women (and men) of a sort that led to very ugly deaths. Anti-vax movements that operate from anti-scientific positions will depress the number of people getting vaccines, and that...

I think the idea that we need to get personal stories out to the larger community either through personal interactions or via the media is vital to turning a tide that has already begun to shift. The film Unrest was hugely important in making ME/CFS a personal story. Thank for that @JenB...

My understanding is that Janet Dafoe is currently in the hospital after having a cancerous tumor removed from her kidney. Bill

I just watched the linked video that was sent to Francis Collins, and it brought tears to my eyes. Well done MEAction! I was surprised to see that I was actually in the video as part of the crowd at Millions Missing in Santa Monica. I looked emotionally moved at the event--which accurately...

I find the video of Janet Dafoe explaining the Whitney plea quite moving. Being a father myself, I can strongly relate to the personal story of a serious scientist gathering a team of other leading scientists at one of the great research institutions in what I'm sure feels like a race against...

The funny thing was, when my mom started running I was 16 years-old and in incredible condition, playing American Football and Rugby in the off-season. My mom would ask me to run with her, which I tried doing, but she was soooo slow. Being a typical insensitive teenager, I finally had to tell...

I found this photo of Merryn Crofts taken (I presume) before she became ill. Just heartbreaking. Bill

Thank you for that! Bill

I'm delighted to report that I just received a very nice e-mail back from the Right Honorable Nicky Morgan MP who among other things says: "I hope that the UK House of Commons can do justice to the issue when we get our debate." Indeed, let us hope! Bill

From the best that I can ascertain, this resolution offers symbolic support for our cause. Which isn't to say that it's unimportant. Often one needs to move through symbolic support to "show me the money." So it's a step in the right direction. The impatient part of my nature thinks "this is...

Do we have a list of which US Senators are already onboard? Bill

I just wrote Minister Morgan myself to thank her from across the Pond for her support for our community there in the UK. Perhaps knowing the news of her work to raise awareness has reached as far as Los Angeles, and how deeply her actions are appreciated even from afar, will help give her...

Yes, I quite agree. I'm optimistic that the tide is turning and that we are entering a new era where we can start driving the agenda. Those who have taken the lead are to be congratulated! Bill

We shall fight on the beaches, We shall fight on the landing grounds, We shall fight in the fields and in the streets, We shall fight in the hills; we shall never surrender

Oh dear. It seems that by popular demand the Undead campaign has been terminated :rofl: Bill

LOL. I strongly suspect that you're correct. But it what I'd ask (with perhaps a little work on the phraseology) given the chance. Bill