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Their expectation that sick, exhausted patients can just bang out a commentary or a blog for them explaining all the same things that have already been explained a thousand times before really irritated me in that Twitter thread. The more I think about it, the more annoyed I become. I doubt...

"We are glad to see the engagement on this", yeah, I bet. If I were being uncharitable I might have something to say about toying with people's lives for the sake of clicks, but... oh, who am I kidding. I am definitely being uncharitable. Vultures.

Come to think, that was also a huge problem for me. Try convincing a GP that "my resting heart rate has increased to 70bpm" isn't normal and they laugh you out of the surgery. Matters not that your normal resting HR was in the low 40s just 3 months previously, so you've seen a 30bpm average...

I interpret it as being a more general "stop obsessing over Rituximab!", which isn't really something that anybody is actually doing. Perhaps she feels that Øgreid has a great deal of influence in the domain of ME/CFS treatment? I don't know. Hall's writing is generally aimed at the demolition...

I haven't, no. HRV wasn't very easy to measure with consumer products at the time I was training. Now the consumer products are there, but my ability to train isn't! It'd still be interesting to look at my HRV at rest though, now that it's easier to do that, so thanks for the reminder. Must...

Hi @philw44, Your data looks very similar to mine. I was a long-distance cyclist before I developed M.E. and I noticed the same patterns in my training data. I also see from your data that your heart rate doesn't get as high on your bad day, and I found pretty much the same thing during...

The article was also posted on Science-Based Medicine last month (I thought it looked familiar!): https://sciencebasedmedicine.org/chronic-fatigue-syndrome-and-rituximab/ I remember thinking at the time that it was a slightly odd angle of attack for all the same reasons stated up-thread - the...

I didn't even know there was a lymph node directly under the chin until I got M.E.! Discovering it was quite a surprise. Mine hasn't blown up for a while, although the ones on the side of my neck and in my armpits often do. I used to get this really bizarre sensation a lot of the time, always...

@Sly Saint I just want to say that I really, really appreciate all the transcripts you do. I'm deaf and as you can imagine, that makes podcasts and videos without captions impossible for me to access. I often see your name associated with transcripts and I'm so grateful for the work you put in...