Search results

Yes! This seems to me to be the true aim of pacing. Any attempt to aim for increase in overall activity is no longer pacing, but rather it is GET. Sure, sometimes we may have fortuitous variations in our ability threshold, but these do not happen because we “aim” for them, nor because we have...

I think for ME patients the situation is different. With diet, you can pretty much take the advice or leave it. Dietary guidelines can be ignored, and you can follow your own advice. With ME there is the situation of pressure - if you want ongoing help from your doctor you really need to...

This isn’t a video about ME but the parallels are striking. There is an interesting section in the middle describing how the advice offered by those in authority can be contrary to the experiences of the masses. And how the authorities then act to preserve their advice, even in the face of...

So what were they comparing this to? People with NO health issues? Might have been a more interesting study, if they had also looked at various other named diseases eg: Cancer Parkinson’s Myalgic Encephalomyelitis Heart Disease and then to compared “Chronic Fatigue Syndrome”. Guess which...

I agree. However, I also think the best chance we have of getting the outcome we need, is if we allow those who support the soon-to-be vanquished view of ME a face-saving exit route. They can say, they were doing the best they could with the information available. But many will understand the...

I was curious about the bit where they said “. . . disease experts recommend . . .”, - they didn’t say exactly who they were referring to. That bit was not referenced.

I thought the document looked alright. Suitable emphasis on post exertional effects. And that “chronic fatigue” is a symptom, and should not be conflated with ME. Even mentions problems of MUS.

Sounds like the need to have a process (any process) in place to tick a box, rather than creating a process designed to achieve something useful.

Interesting. They talk of 15 patients in the study, but then admit only 60% of them met the Holmes et al definition of CFS. So that was 9 patients then. Oh but all met the CFS definition from Sharpe et al. :confused:

Which it seems is the whole point!

Very good to see that written down :) Now - change?

Or put another way: Evidence shows that when a therapy fails to produce results, patients demonstrate a reduced commitment to continuing with therapy. Wonder why that would be? How can they honestly tell the difference?

Know I’m totalli confusticated - nyther spieling looks ryght to mi?? :arghh::wtf::facepalm::confused:

I remember reading about how ME peeps have difficulties with eye focus. Especially when tracking a moving object. (Wonder might scanning across words in a sentence also give same issue?) Anyway I googled and found this, which I think is the one I read before...

For me, I found I suddenly started typing the wrong version of similar sounding words. I never had this problem prior to ME. Things like: There - their - they’re Too - to - two Our - are @Peter Trewhitt - I definitely read by converting the words I see into sounds. Perhaps, that might...

Quick Google brings this up. Close enough to my version of the story I guess. http://www.theozonehole.com/ozoneholehistory.htm

Apparently the first recordings of the ozone hole over one of the poles was so far from expected, that it was initially disregarded as recording equipment malfunction. However, the scientists concerned didn’t just leave it there. They checked everything, verified the equipment, and took the...

I think it’s supposed to go the other way isn’t it? The model should be revised to accommodate the observations. (Unless the observation is determined to be a misperception of some sort of course ;) )

Ah! I missed earlier replies saying much the same thing!

I think it might be more correct to say that science, as a process, has the potential to uncover at least some of the eternal truths of the universe. :)