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    Lack of fever during acute infections

    Same for me in 34 years. Could having very low NK-cells be the cause of that? When the first line of defence against unwanted guests is down what is protecting me against those bad cells?
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    Mestinon

    Normally I don't like boring, but in your case keep the boring coming. :thumbup:
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    What research do you want to see? (study ideas)

    And please include all patiens with ME/CFS also the normal blood pressure and normal heart rate group.
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    Preprint Preload insufficiency as common denominator of exertional dyspnoea in distinct post-COVID phenotypes, 2025, Oruqaj et al.

    When I drink a 600 ml cup of broth, salty) the veins on my hands bulge. Normally they are just visible. Makes a bood draw a lot easier, but what would be the effect on the results of a blood test when I dilute what is in my veins. I asked around internationally. Only one researcher, not in...
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    "Emergency departments aren’t trained for Long COVID — and patients are paying the price" (The Sick Times)

    LC and ME/CFS a "between the ears" thing has relocated to a "between the ears" thing in doctors. Also known as lack of knowledge and prejudice.
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    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    That way of getting off the floor feels familiar, I have to do it on hands and feet. The "its the nerves doing it" does not stike a chord with me, part of it maybe, not all though. I only had 1 1/2 half minute of aerobic energy on my CPET. Are nerves eating my pyruvate, or the immune system...
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    National patterns of age of ME/CFS onset

    I used te follow the news from the main ME organisation. Stopped and went on to other channels. Probably the more recent patients are following the main ME organisation more frequently. Being older I would not be so keen on participating anyway. 99.99% of GP's and specialists are ME/CFS deniers...
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    NL: UWV Dutch Employee Insurance Agency ao disability

    Wouldn't it be really interesting if Jos van der Meer could describe his change in views about pwME/CFS here on s4me? From being a staunch supporter of CBT/GET, to defending patients against UWV docs. I am delighted that at least someone can change his mind, looking at scientific data and...
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    News from The Netherlands

    NOS News: Some immediately stopped thinking again:banghead::banghead::banghead: The Association of Pediatrics says CBT/GET works and they have proof, they say. And what about the proof that it causes harm? A country where specialists stopped thinking decades ago!
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    News from The Netherlands

    Finally some people start thinking about ME/CFS Thanks for posting!
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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    I help you hope that. My feeling is that it's not about their article in the first place, but the responses. They probbably want to find ammunition to fire back. @dave30th Does FWM, reacting on your blog of May 24th, write like one of the braintraining gospel group?
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    Could nerve damage or retrograde microtubule based transport in axons explain the delay associated with PEM?

    About neurologists being biased: Recently I saw one of those. First year neurologist. I told him in the shortest way possible what brainfog meant to me. Final year uni student, I had to drop out and started working as a telephonist, that's all I could do. In the letter to the GP he wrote...
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    Preprint A Proposed Mechanism for ME/CFS Invoking Macrophage Fc-gamma-RI and Interferon Gamma, 2025, Edwards, Cambridge and Cliff

    Could being low on NK-cells, mine were flatlined on the x-axis, be protective against the flu-like-PEM symptoms? No extra interferon gamma produced?
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    Internal medicine at the crossroads of long COVID diagnosis and management, 2025, Ranque and Cogan

    In my 34 years of ME/CFS the internal medicine doctors were the most unwilling ones to do any testing at all. The last one only offered one hematocrit test. The first one only willing to pay attention to my thyroid. The other symptoms were dismissed. I stopped seeing that one and it could have...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Thanks for your correction @Utsikt, I've deleted my post. I posted too fast, too furious. I apologize.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    150 pounds for garbage livestream?
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    Patients with severe ME/CFS need hope and expert multidisciplinary care, 2025, Miller et al

    Still too many of those horses answering: "Not my cup of tea". Confirming prejudice happens fast, changing minds takes much longer.
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