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I feel you:hug: Thanks for putting in your time!! You've been really busy today. I even appreciate the"bad" articles you have to put out here. Know thy enemy is important too. Most of what you post I will see and your weekly updates keep me updated. The doctors are taking CME credits, but have...

In Muscle abnormalities worsen after post-exertional malaise in long COVID (2024, Nature Communications) — Appelmans.. Wüst mention that fibre-type shifts occur at a very slow pace. Discussion 2nd paragraph. When rodents, having been in space, change muscles from slow to fast in just 7 days...

Check and double check the first patients and stop prescribing CGT/GET, could have prevented a lot of harm. Pure wisdom Trish! The professionals are uncapabable of understanding your wisdom when it is about ME/CFS. They'd rather deny reality. "I have been taught my therapie works, now I see...

The problem with psychologists starts with local doctors and specialists sticking to what they have learned; ME/CFS is a 'between the ears thing' It doesn't even matter how long ago,10, 20 30 or 40 years, they finished their training. Doctors only do a bit of testing on a patient to rule out...

Have they used a questionair to find out the results?

On the other side of the world you must have an abundance of patience. 6+ years of study, another 6 years to have a vacancy here. Me getting into that practice even more. By the time he/she would be ready for an appointment with me, I would have learned so much more from you and all others on...

The first ME/CFS patient, a teenager back then, of dr. Speight, intervieuwing hiis own doctor. I only got through the first part. A very good historical bird's view. Just two psyschiatrists studying patient-files, written by others, probably very biased. They had not seen any of the patients...

Note that this post has been moved. The thread with the post referred to is Genetic Risk Factors of ME/CFS: A Critical Review. Joshua J Dibble, Simon J McGrath, Chris P Ponting. 2020 It is on Zonmw for a new round of susidies. Please go to the original @SimonM an Chris Pointing research on...

I live close to Groningen, Rosmalen-city. But I'm really glad I'm not in Lifelines. I was given the all clear by a psychologist; in Lifelines I would have had FND, FSD and FBOPD, that's a new one; Functional Beware Of Psychologists Disorder. Decades ago I even did a psychotherapy training...

The Lifelines ME/CFS cohort was based on Fukuda criteria, (Rosmalen) in Groningen. Patients got reimbursed for the 4.4 million by the government. New database in line with Decode ME, with that 4.4 million budget.

Good thinking! Thanks a lot for all of your posts. Your highlights and comments are really helpful and highly appreciated. Sometimes, being a poor alpha, you can make even me understand a bit of the science behind ME/CFS. I found a connection with muscle changes in space. Maybe of interest to...

Last bit. You seem to be on the tipping point of feeling it as if you were a patient. Real heartfelt empathy. Thanks:hug: In my opinion Sharpe and Walitt are in the business of correcting the patients misconceptions about their 'illness'. Sharpe used his own misconception, PWME can't cope with...

Thanks @Arvo for giving me a slap on the wrist, not to use your work for a gotcha! thing. I'm a little crab that was pushed to the top of the bucket and I decided to jump over the rim to see what is out there. You'd be surprised how many little crabs out here are doing the same. Fitting all our...

Thanks @Arvo for your relentless work on this. When you put your teeth into something you really shred it to pieces, just by facts. Offended by it here on s4me, no way! Maybe Walitt, Shorter and others will be, but they deserve it. The quote you gave from Nath above can also be explained in...

Maybe I'm the answer to the question. I had a psychological evaluation as part of extended sleep research. DSM-3 and DSM-4 and what seemed to me a specialized psycho-somatic test, all written tests, and an evaluation by a psychologist. This was in 1996, DSM-5 didn't exist yet. (Lucky me?)...