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My alcohol intolerance is that I get a hangover effect from just a sip, directly and also a poisoned feeling. (I did not vote because it is immediate, not delayed). I have also developed a lactose and fructose intolerance since I got ill. Could this combo be related? Could this combo mean the...

Any speciality should be deprogrammed from the cult before sending patients there. Options after; immunology, internal medicine, maybe neurology. The speciality most likely to be empathic and listening.

It seems like a conversion therapy. Is that still legal in the UK? oh found this article https://www.bbc.com/news/explainers-56496423 Conversion therapy is going to be banned for gays. Now please ban conversion therapy for ME ptnts who have to pretend to be well.

It all sounds like the unscientific media centre playbook. A playbook that seems to get more and more traction. A web of unscience, politics, media that seems very powerful and connected. We need charities that can stand up to that power, however they seem connected in this web or are...

The PEG was not offered in hospital. It was however discussed in the inquest, as to why other options were not offered.

Agree about the debate about the non-working stomach. The drs in hospital only considered the NG tube I thought?

The point should be moot, she wanted to live, she wanted to eat. A dr should do no harm, a dr should do their best to keep the patient alive. That should be the discussion. Why are drs allowed to behave in this manner.

I can make a concept press release, if interested?

The letter/petition were good steps. Another step would be putting out a press release to reach a much wider circle.

Has there been a press release by any of these organizations? Since Cochrane seems intent not to respond, public shaming seems the only avenue left.

Nath’s effort preference seems to be ZERO (and my other thoughts I’ll keep to myself)

I see a lot of twitter or X links. The issue with links is that tweets can be removed, the link can change, X can cease to exist etc etc and so we could lose important information. my question; can we please screenshot them, like mr Magoo?

Key issues that determined this outcome; - parents did not have legal counsel other parties did, which put them at a huge disadvantage - the drs all seem to have been coached - coroner suggested Alistair Miller as expert witness (preinquest) - no documentation found on the safeguarding Maeve...

Sorry to be a Debby Downer but from a money/power standpoint they are so in control because insurers/governments/media seem to be psycho quackery proponents and we have ourselves and ME organization that ar or underfunded or have dubious links to governments/ reseachers who support the psycho...

In my country, the Netherlands I know the term medicalisation in the context of giving birth. Some health authorities were fearful when developing a new guideline for birth care that births would be medicalized as opposed to natural births without medical interventions. So my understanding is...

Could it be due to legal reasons? Is it more difficult for possible victims to pursue legal actions if she has rescinded her dr’s licence?

This makes me shudder, deep in the BPS-cult.

Signed and no UK resident :)

May I add statistics on ME

Is the knowledge not there or are they willfully ignoring it because they will otherwise loose their position and financial gain? I honestly cannot understand that medical professionals who have probably seen thousands of ME patients, would not know. Even moderate patients are in dire straits...