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Clarification on my comment; To me PEM has always been ‘ a worsening of symptoms’ that sometimes has a delayed effect. So direct and delayed effect. Now it seems we are redefining PEM as only or mostly delayed PEM. So what are the direct effects after stimuli and exertion? To me it is...

Agree, it seems we are redefining PEM and excluding an important part of it

But if we find better words, we are able to put them forward in advocacy. Now we don’t have the right words.

What about Deteriorating Stimuli and Exertion Intolerance? Advantage; it would add the stimuli. Edit; leave exertion in

People who have ‘psychological inflexibility’ or people with excellent bs radars?

Some drs should forgo formal medical training and get their degrees from Hogwarts so they can practice their favorite spell ‘psychosomatico’ haha.

This one, for the US study? https://www.cdc.gov/nchs/products/databriefs/db488.htm

I just don’t get it, the way this government speaks about the disabled and announces cut after cut for the disabled. The way they speak you would think people are unwilling to work. When in fact a lot of disabled are working or would want to work, but can’t. This coupled with the unwillingness...

That sounds terrible Wonko, ugh so sorry you had to deal with that

Not from the UK but knowing how stressful the process is to get disability I really feel for you all.

Mother of … what a load of tosh

I wonder if it could also be the body requiring potassium, and potatoes are a good source for potassium. Edit; (also) and I do also have the salt craving

I am also a potato craver haha. Have you tried oven fries? Do not take that long to prepare and easy.

Well, I agree about the groupthink. I am just disappointed that journalism is entertaining this so much these days. To me good journalism is 1) gathering facts/research/ information and write an article on the facts found. Less and less of that.

The way in which Garner finds the media every time makes me think there is some kind of publicist behind it. It almost seems like a campaign.

Another useless organization payed for by us, to prevent doing anything for us.

Does this man EVER give it a rest? Loads of more thoughts but it would go against forum rules.

The void exists for a reason imho; to keep the BPS train going. Because how can you rehabilitate patients that not only cannot exercise (because bedbound) but are also (almost) unable to communicate. So exclude the severe, even the moderate and only treat the mild and include people who do not...

They should locate all the people that could NOT comply with the GET and CBT and were not counted in the results of these studies, and research them.

That is the way it should be. Hope it goes through. How could you prove that?