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I think it is very interesting that those people always find a way to exactly describe what monstrous thing they are doing, but ascribe it to either their immediate victim or some part of a victim's support/coping system. I guess it is an attempt at not feeling like a monster when in fact, you...

I wish I had ended my previous post using your signature.

For what it's worth, 70% of HRmax is a pretty decent pace and if they successfully matched the workloads for all intents and purposes HIIT should actually fare better if my personal experience is any guidance. Steady-state cardio triggers the worst symptoms in me (although it is very debatable...

If I may quickly rant about another pet peeve of mine, feel free to ignore though: Every exercise program tends to include some kind of progression because the underlying assumption always is that you adapt and then have to increase the stimulus to adapt further. Predicting this progression...

I have this pet peeve theory that is probably wrong but well intentioned that some of us might have trouble with on-demand blood flow because something something vascular something something loss of elasticity, something shear stress. It is not very thoroughly thought out but I do respond...

That is so very true! We probably would have to talk to someone who does actually use ECT and let them explain the situation to us. If they are indeed using classic ECT on pwME I wonder why I have never heard of clinical trials proving they are safe/effective. There is a lot of talk about how...

For what it is worth, I personally have never heard of any patient being treated with real ECT for their ME/CFS in Germany. I am not all that well connected with our community and have zero experience with people who were sectioned or forced into the perhaps more misguided parts of our rehab...

If I may comment as a casual onlooker (...can't speak for anyone, obviously, but wanted to comment anyway because I think this is a really important discussion to have - and what I have to say is really more aimed to refocus the metadiscussion than to add actual value since I'm kinda preaching...

Healthy friends hooked me up with a new monitor (old one broke) and phone (old one about to break) they had lying around and organized a get together for New Year's Eve where I don't have to do anything at all and everything including a special meal for me (since I can't eat many foods anymore)...

Didn't they just sort of disprove their methods work for anything that could have been included by the selection criteria (whatever that may have been) and now the onus would be on whoever still wants to find out if their 'treatments' are ever of any use whatsoever to find exceptions to that rule?

There may be something to this train of thought, not only regarding movement but generally how hard it is to measure our dysfunction properly. E.g., I got sick during my last years of school and dropped roughly one level on my grades. But before, I was not trying that hard because nothing apart...

Well honestly, if this is all the side effects I'd get from that I would literally pay to be frizzled every two weeks if it meant I just had the ME without the emotional rollercoaster that seems to be an integral part of it. I don't have any idea what I was doing this entire week anyway - heck...

Didn't we have a discussion on ECT a while back that concluded it is probably really good when it is appropriate, but is a tool that should not ever be put into the hands of morons?

Wait, what? Why would anyone at Cochrane ever agree to this?

Regarding the ESR, did anyone notice differences testing that when PEMcrashed vs rested?

...and if they didn't, it would be on the baboons for being on the hunt for secondary gains. o_O

Looks like a standard whitewashing buzzword bingo exercise to me until proven otherwise. Just on the two points quoted in the OP: on 2) It is easy to claim to be 'committed to eliminate stigma', but when you have people in your field doing the stigmatizing in order to get sick people off...

If there is a single post on this entire board that needs to be the basis for an honest debate in the entire western society, it is this one.

I don't have the mental endurance to read the full paper, so I hope it's all right if I ask question & mention points related to the abstract and stuff connected to it that may be answered in the study... 1. They say they selected subjects who participated at follow-up. How does one account...

I'd rather we ignored her tbh, it seems like a waste of time to figure out whatever it is that woman is on about. Edit: ..Sam beat me to it.