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Today, 26th January 2025, the S4ME committee submitted the following complaint to Cochrane complaints: _______________ We, the committee of the Science for ME international forum, submit the following complaint to Cochrane. The Cochrane review that is the subject of our complaint is Exercise...

PETITION UPDATE News from the IAG, and other good things 24 Jan 2025 Things have been happening! And so we'll put our examination of Cochrane's second excuse for abandoning the replacement review process in the next update. In this update, we cover a Retraction Watch article about the...

PETITION UPDATE https://www.change.org/p/cochrane-withdraw-the-harmful-2019-2024-exercise-therapy-for-cfs-review/u/33189070 News from the IAG, and other good things 24 Jan 2025 Things have been happening! And so we'll put our examination of Cochrane's second excuse for abandoning the...

The forum committee is posting this locked thread to let members reading this forum know about a project we have started. The project will develop a set of fact sheets about aspects of ME/CFS such as symptoms, treatments, pacing and prognosis, starting with 'What is ME/CFS?'. For more...

The committee has made an announcement about the project discussed in this thread: The Fact Sheet Project Members can contribute by being part of the writing teams for two initial topics, and also by contributing information and opinions on the fact sheet development threads for each topic.

PETITION UPDATE On Cochrane's excuses for scrapping the replacement review process they set up: Part 1 5 Jan 2025 People following this saga will be aware that, in December 2024, Cochrane abandoned the preparation of a replacement for the flawed 2019 Larun et al review of exercise therapies...

PETITION UPDATE How a review published in 2019 became a review published in 2024 24 Dec 2024 2019 or 2024? The observant among you will have noticed that we are now calling for the Cochrane 2019/2024 review (rather than the 2019 review) to be withdrawn. The reason for the change is...

PETITION UPDATE Cochrane abandons the replacement review 19 Dec 2024 Cochrane cancels the review update A year after Hilda Bastian's last update from the Independent Advisory Group, and months after she last responded to any posts on her talkpage, Cochrane has made the following...

Following committee agreement with support from a vote by voting members, the following letter has been sent by email to the members of the Cochrane ME/CFS Independent Advisory Group: Dear [IAG member] We are writing to you on behalf of the committee and members of the Science for ME...

PETITION UPDATE 1 October 2024 Enough is Enough Thanks to our supporters Thank you so much to all have signed and shared the petition link. Thanks to Fatigatio e.V. Bundesverband ME/CFS in Germany for adding their support to this campaign. We now have 77 organisations, including most national...

Received today, 27th September 2024: Dear Andy, To update you, we are still investigating your complaint about the 2019 Cochrane review, "Exercise therapy for Chronic Fatigue Syndrome" by Larun et al., and we will update you as soon as we can. Kind regards, Cochrane Complaints

Received today, 21st August 2024: Dear Andy, Following up on your complaint about the 2019 Cochrane review, "Exercise therapy for Chronic Fatigue Syndrome" by Larun et al., we are still investigating and we will update you as soon as we can. Kind regards, Cochrane Complaints

PETITION UPDATE 20 Aug 2024 Thanks to our supporters Thank you to the 11,300 people supporting the campaign from 76 countries. Thank you also to The Grace Charity for M.E. for adding their support to this campaign. We now have 76 organisations calling for the 2019 review to be removed...

Reply from Cochrane, 7th August 2024: Dear Andy and Trish, Thank you for completing the webform. We note that this complaint is about the 2019 Cochrane review, "Exercise therapy for Chronic Fatigue Syndrome" by Larun et al., and have assigned your complaint to the most relevant member of...

The forum committee sent the following email today, 7th August 2024. If you want to comment on this letter, go to the Petitions thread. ________________ To: Cochrane complaints Copies to: Chair of Trustees Karla Soares-Weisser Hilda Bastian Dear Madam or Sir, It is now over eleven months...

PETITION UPDATE 30 May 2024 Thanks to our supporters Thank you to the more than 11,000 people who have supported the campaign. With the most recent additions from Zambia and Nepal, people from 76 countries have signed. Thank you also to the following organisations for adding their support to...

Forum Rules Rule 1: Take care with comments to and about other people While vigorous debate and criticism of arguments is permitted, it should be focused on issues related to the aims of the forum. a) Interaction between members on the forum In forum discussions, disagreement should focus upon...

The following response has been received from Cochrane: Dear Trish Davis and the Committee of Science for ME international forum, Thank you for your correspondence. We will include the additional points and references to studies in our review of the issues raised by S4ME in previous...

We have had a reply from the MEA to the letters from the S4ME committee Open letters to the UK ME Association trustees about a research project developing PROMs, led by Sarah Tyson

Letter received from Neil Riley of the MEA today: "Dear Trish and Maree. Thank you for your email of the 2nd April 2024. I note your formal complaint. I have read carefully what you say. There are some points I agree with and others that I do not. . We come from our own experience of the...