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  1. TiredSam

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Not too keen on the stock image of a model in bed: https://www.istockphoto.com/de/foto/foto-einer-frau-die-aufwacht-gm1257805561-368739078 Although I must grudgingly admit I liked her video on toxic positivity: https://www.instagram.com/reel/Ch2b5GRJ0ST/embed/?autoplay=1
  2. TiredSam

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Didn't you read the tweet? Honestly, what more do you want?
  3. TiredSam

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    That shows how utterly clueless Turdie Chalder is about ME. That is literally the difference between ME and other illnesses, that building back up again slowly once you start to feel better doesn't work and that you run into a brick wall. We all tried that at the beginning of our illness, we all...
  4. TiredSam

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Not putting out shit about type A personality would be just splendid.
  5. TiredSam

    JK Rowling new book — chronic illness references

    So what's the correct terminology for those who support trans rights?
  6. TiredSam

    JK Rowling new book — chronic illness references

    If we are to tackle this matter at all, it would probably be best to do so when it is out of the limelight. A simple FOI request shouldn't be labelled as harrassment. The history of ME is littered with examples of how expressions of legitimate concern have been portrayed in ways they shouldn't...
  7. TiredSam

    News from Germany

    Translating "Pacing" as "körperliches Training" (bodily/physical training) is ridiculous and sinister.
  8. TiredSam

    JK Rowling new book — chronic illness references

    If that's the case it may be better not to make a fuss. "Chronic illness was left out of the TV series after discussions with the BBC" is a non-story, but if she can vamp it up to "Chronic illness had to be left out of the TV series due to threats by online militant activists cancelling my...
  9. TiredSam

    JK Rowling new book — chronic illness references

    Are any of the characters trans-rights activists, or has JKR decided to chicken out of her fight with them and go for an easier target?
  10. TiredSam

    JK Rowling new book — chronic illness references

    Indeed, I can just imagine the headlines - "Woke online activists are now trying to silence national treasure JK Rowling" etc. We can be sure she'd make a meal of it. We don't have to accept the role that she's assigned to us. Maybe she'll have self-destructed in the manner of Laurence Fox...
  11. TiredSam

    Phaeochromocytoma and adrenalectomy

    Just spoke to her, as far as I can make out she had genetic testing and it took 3 months for the results to arrive. Nothing to worry about and not familial she says. She had a tumour on her adrenal gland. We've just heard that my brother has a tumour on his kidney, results of tests awaited...
  12. TiredSam

    Phaeochromocytoma and adrenalectomy

    I'm afraid I don't know, she lives in France and we only talk every month or two. She will have gone to the very best clinic and had the best possible treatment. I'll ask her for more details the next time I speak to her.
  13. TiredSam

    Phaeochromocytoma and adrenalectomy

    My sister had this last year, full recovery as far as I know. Must get myself checked.
  14. TiredSam

    The Significance of Pain Drawing as a Screening Tool for Cervicogenic Headache and Associated Symptoms in Chronic Fatigue, 2022, Bernhoff et al

    I had the same problem the last time a doctor said they needed to draw my blood. I was looking around for the red crayon when suddenly someone stuck a needle in me.
  15. TiredSam

    Tiredness, fatigue and exhaustion: all the same or manifestations of a continuum?—Food for thought, 2022, Matti et al

    Amen to that. I wonder if we'll be seeing the same happen to "brain fog" soon - people using the term to describe standing in front of the fridge not knowing what they went there for and otherwise borrowing it until it becomes meaningless. At least OCD and migraine are clearly defined proper...
  16. TiredSam

    The utter stupidity of questionnaires as tools for diagnosis. A lighthearted look at some questionnaires misused in ME/CFS research

    I have had to fill in the Chalder Fatigue Questionnaire twice. Both times just before a long-awaited appointment for something I wanted (diagnosis the first time, tilt-table test the second), so I felt it was a particularly dirty trick to have that snuck in at the last minute. Each time the cost...
  17. TiredSam

    Predictors of “brain fog” 1 year after COVID-19 disease, 2022, Cristillo et al

    Was this questionnaire written by a frustrated blues musician? A guaranteed "Yes" from anyone who's just had this questionnaire shoved under their nose and had to answer the previous 14 questions. Seriously? Only people who answer yes will be able to answer this one at all. Everyone else will...
  18. TiredSam

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Brilliant. Adler doesn't provide any answers herself, just prides herself on "good questioning". So she's done her job, and if the answers the patient comes up with don't work, guess who's to blame? And guess who's completely unaccountable?
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