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  1. TiredSam

    Psychomotor Vigilance Test - discussion and testing

    Oh good, a competition. Results: Test Duration= 122 seconds Number of false starts= 0 Average response time= 266 msec over 25 attempts. Your results show that your vigilance and alertness are excellent
  2. TiredSam

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    I kid you not, at first take I read that as " ... cremating real-world solutions ... ".
  3. TiredSam

    Germany: ME/CFS Research Foundation

    From their newsletter, DeepL translation: ME/CFS Research Foundation announces research funding strategy and appoints international scientific advisory board Hamburg, August 18, 2023 Since 2022, we have been advocating for more biomedical research on ME/CFS. We and many other organizations...
  4. TiredSam

    Clinical support and encouragement versus manipulation (includes motivational interviewing)

    Really, have you learned nothing from these people? Can we tweak that to Infantilising Demeaning Insulting Oppressive Totally Insensitive Crap? With the right acronym you can get funding and publish a study.
  5. TiredSam

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I post this on behalf of @MSEsperanza, who is currently unable to post: In reply to others' questions about the definition of GET. Not sure about the exact wording, but could it be helpful to check the videos accompanying the PACE trial report in The Lancet? Only remember vaguely but maybe...
  6. TiredSam

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Could try this: Elsevier journals: publication fees and access to paywalled articles On the above thread @MSEsperanza tried it successfully.
  7. TiredSam

    News from Germany

    It's actually the pension authority that is pushing GET onto patients. No GET, no disability pension. It's a great way to discourage people from claiming a disability pension, you have to prove that you've tried "rehabilitation" before you can have one. I'm in danger of breaking Godwin's law here.
  8. TiredSam

    Elsevier journals: publication fees and access to paywalled articles

    Elsevier journals -- Access for healthcare and patients Patient access Patients and caregivers can make requests for individual papers related to medicine and healthcare at no cost. These papers can be requested by e-mailing patientaccess@elsevier.com. We aim to provide the requested articles...
  9. TiredSam

    The Chrysalis Effect

    Elaine Wilkins is faking a career for secondary gains.
  10. TiredSam

    A general thread on the PACE trial!

    What a spiteful load of tittle-tattle. Stopped reading before I got half way.
  11. TiredSam

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    Meaningful, significant. Aussage is a statement, so Aussagekräftig is strong or powerful enough to allow a statement to be made. I think.
  12. TiredSam

    News from Germany

    My best effort at a translation of that twitter thread: Martin Rücker The topic of aid for #MECFS sufferers is now finally the subject of party-political disputes. This is not good and not appropriate for this subject. A short analysis of what happened yesterday in the #Bundestag and how to...
  13. TiredSam

    News from Germany

    Martin Rücker auf Twitter: „Das Thema Hilfen für #MECFS-Betroffene ist nun endgültig Gegenstand parteipolitischer Auseinandersetzungen. Das ist nicht gut und der Sache nicht angemessen. Eine kurze Analyse, was gestern im #Bundestag passiert ist und wie der Stand zu bewerten ist. “ / Twitter
  14. TiredSam

    BBC article: Are Iranian schoolgirls being poisoned by toxic gas?, 2023 (quotes Wessely)

    Simon Wessely: Whereas poisoned schoolgirls are safer letting the Iranian government handle it than having Wessely handle it.
  15. TiredSam

    News from Germany

    Sabine Hermisson auf Twitter: „Ich bin sehr gerührt: In Milas alter Schule starteten Jugendliche mit dem IT-Lehrer das Projekt, ein Kommunikationstool für sie zu entwickeln: Sie informierten sich ausführlich zu #MECFS und programmierten ein Tablet so, dass Mila mit dem Finger einzelne Buchstaben...
  16. TiredSam

    Efficacy and tolerability of an endogenous metabolic modulator (AXA1125) in fatigue-predominant long COVID: a single-centre, double-blind, randomised

    Sky News article: https://news.sky.com/story/new-long-covid-drug-may-significantly-reduce-fatigue-in-patients-12856906
  17. TiredSam

    News from Germany

    ME/CFS: New training series for affected children and young people as part of a study https://nachrichten.idw-online.de/2023/04/11/me-cfs-neue-schulungsreihe-fuer-betroffene-kinder-und-jugendliche-im-rahmen-einer-studie?groupcolor=3 Google translate ME/CFS: New training series for affected...
  18. TiredSam

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    2nd International Meeting of the CFC - Charité Fatigue Center ME/CFS Conference 2023 - Understand, Diagnose, Treat Date: Thursday, May 11, 2023, 9 a.m. to 6 p.m. and Friday, May 12, 2023, 9 a.m. to 2 p.m https://www.medpoint-gmbh.de/me-cfs-conference-2023 Link to Flyer / PDF on the...
  19. TiredSam

    USA: Cleveland Clinic

    Anyone who claims to be an expert in M.E. with a treatment plan involving exercise every single day should be thanked politely for their time and bid good day.
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