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  1. Art Vandelay

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Yes, there's another similar odd account here: https://twitter.com/cfs_research Both are relatively new. This one makes me think of a certain person who has a book to sell about 'curing' yourself from CFS using mind over matter.
  2. Art Vandelay

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    It must be difficult to watch as your carefully constructed web of lies is slowly unravelled and, with this, watch the collapse of your whole empire.
  3. Art Vandelay

    RCT of online continuing education for health professionals to improve the management of chronic fatigue syndrome: protocol (2017) Lloyd, Barry

    With the looming collapse of PACE, Lloyd appears to be trying to prop up his taxpayer-funded empire of quackery with dubious research of his own. As for the Mason Foundation (who funded this rubbish), a lot of Australian patients (and perhaps even some local ME advocacy organisations) contacted...
  4. Art Vandelay

    Open-label pilot for treatment targeting gut dysbiosis in ME/CFS: neuropsychological symptoms and sex comparisons, 2018, Wallis et al

    Don Lewis is a very well respected ME/CFS doctor in Melbourne and has collaborated with a few members of this team before on publications from memory as well as others like Chris Armstrong. Henry Butt in particular has been involved with CFS research (mainly on the gut) for ages -- his name even...
  5. Art Vandelay

    David Tuller: Trial By Error: Professor Crawley’s Bogus BuzzFeed Claims - 17th January 2018

    "And then my dog ate all the raw data so unfortunately I can't share it with anyone."
  6. Art Vandelay

    Unrest now on Netflix

    Available in Australia.
  7. Art Vandelay

    Warm brain

    I get this too. I (half-jokingly) say that if I'm forced to exert myself mentally, I can feel steam coming out of my ears from my brain overheating.
  8. Art Vandelay

    Are objective outcomes of cognitive function possible?

    Many years ago, I participated in a PhD student's study that attempted to test cognitive function in CFS so my memory of it is pretty hazy. It involved a lot of games, tests and puzzles with a focus on short term memory I think. They were fairly basic tests that you might give to a primary...
  9. Art Vandelay

    (Not a recommendation) Alastair Miller on CFS

    Spot on. I don't give a crap what Miller and his fellow quacks 'believe'. They should have to scientifically prove that ME/CFS is psychological (or partly psychological dysfunction as he claims). Put up or shut up.
  10. Art Vandelay

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    The problem I have with these announcements from this team is that I feel like they are raising false hopes among patients and their families. This is possibly the third 'big announcement' this year from them of the discovery of a diagnostic blood test (not to mention they've found the cause of...
  11. Art Vandelay

    Non-ME harmful/incorrect psychological/psychiatric theories and treatments

    Recovered memory syndrome - the pseudo-scientific idea that traumatic memories from childhood can be suppressed by the mind and that these repressed memories can somehow cause physical and mental illness later in life. It was very a convenient concept for the BPSers because they could claim...
  12. Art Vandelay

    Common acne medication offers new treatment for multiple sclerosis

    It has been postulated by some that MS in some cases can be caused by Chlamydia Pneumoniae. If this is the case, an antibiotic like minocycline may well give some improvement. More from David Wheldon: http://www.davidwheldon.co.uk/ms-treatment1.html
  13. Art Vandelay

    David Tuller seeks anyone involved in the 1955 Royal Free Hospital ME outbreak

    Thank you, @Daisymay . My flatmate also came down with EBV some weeks later and was very ill for at least 4 weeks. Her parents came to look after her and her father mentioned that he'd been sick with EBV for over 6 months when he was younger and had "never been the same since". It was a relief...
  14. Art Vandelay

    David Tuller seeks anyone involved in the 1955 Royal Free Hospital ME outbreak

    I was given two weeks off work (in the 1990s) and told that I'd be back to normal after then. When I returned to the doctor after 3 weeks and told him I was still ill, I was told that this was 'impossible'.
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