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  1. Mij

    Dr Byron Hyde - Canada

    He was also a patient of Dr. Chia for over 11 years and tried many treatments. That didn't save him either.
  2. Mij

    Dr Byron Hyde - Canada

    My best friend died from ME complications 3 years ago, so I am very aware. He was lured into trying many long term abxs for so called "chronic lyme" and other pet theories suggested by 'ME specialists' because of desperation. He was severely ill for 18 years. I am more interested in...
  3. Mij

    Dr Byron Hyde - Canada

    My understanding is that the standard treatment for ME is managing pain and sleep. Am I missing something?
  4. Mij

    Dr Byron Hyde - Canada

    My understanding is that he ruled out other illnesses that perhaps a GP or specialist might not order. But yeah, charging $5000 is a rip off.
  5. Mij

    Dr Byron Hyde - Canada

    The ME doctor I saw 28 years ago was partners with Dr. Hyde, they went their separate ways just before I started seeing him. He was a diagnostic doctor and helped us get disability, but stopped seeing ME patients in 2000. I sensed that he was being carefully monitored not to over...
  6. Mij

    Benign Paroxysmal Positional Vertigo (BPPV)

    I was diagnosed with this 28 years ago- day one of ME onset. Began with a sudden viral onset.
  7. Mij

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    Canadian man convicted of poisoning Canadians.
  8. Mij

    Warnings against dangerous Miracle Mineral Solution (bleach, chlorine dioxide)

    British man arrested for poisoning Ugandans.
  9. Mij

    The Mind-Body Syndrome Study (2019) Maroti et al

    I've embraced the wonderful invention of earplugs a long time ago. You can't stop me now.
  10. Mij

    Easy sources of protein

    Roasted chickpeas. You or someone at home can roast a large batch with some spices. They are very yummy.
  11. Mij

    Activity baseline vs activity ceiling, why concepts and language matter

    I'm truly sorry that you are going through such difficulties. The ME specialist I saw 28 years ago advised me to do 'nothing'. Listen to your body, you are feeling sick (as you stated) after minor movement, that is your body telling you that you are overexerting yourself. Slowly...
  12. Mij

    Activity baseline vs activity ceiling, why concepts and language matter

    @lunarainbows Increasing activity is the wrong advice, and increasing by 10% every week is an absolute- no. There is no timeline with ME. You are in charge of what you can and can't do.
  13. Mij

    Cholesterol

    My sister has high LDL and is overweight, her GP wanted to put her on Statins, but she refused and is trying to lower it with diet. When my LDL was high my GP told me she would put me on 'meds' if I was pre-diabetic and had high BP. My LDL is still on the higher end but she no longer...
  14. Mij

    Cholesterol

    @Sarah94 my understanding is that it is based on 3 factors, your LDL, HDL, triglycerides, ratios and risk factors. Your BP and glucose fasting comes into play too. It can be a bit confusing.
  15. Mij

    Can You Reshape Your Brain's Response To Pain? NPR article, June 10, 2019

    I fell off a teeter totter when I was 3. This is the reason I joined S4ME.
  16. Mij

    PENE crash and muscle pain

    Ramsay: "(2) Neurological disturbance – an unpredictable state of central nervous system exhaustion following mental or physical exertion which may be delayed and require several days for recovery; an unique neuro-endocrine profile which differs from depression in that the...
  17. Mij

    Weekly collapses

    Here is something I found regarding adrenaline surges: Medical conditions that cause an overproduction of adrenaline are rare, but can happen. If an individual has tumors on the adrenal glands, for example, he/she may produce too much adrenaline; leading to anxiety, weight loss, palpitations...
  18. Mij

    Weekly collapses

    I'm assuming you are male? I've had (and still have) similar episodes since menopause started a few years ago. They feel like adrenaline surges.
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