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Myalgia, mainly in the thorax and arms Fatigue gets worse I need to lay down in my bed feeling IBS Palpitations Shivering Brain fog, poor word recall, can't focus on anything.

Hi @Andy , congratulations for the first vídeo and thanks to Dr Montoya, Can I add Portuguese subtitles? I have a youtube channel in portuguese, dedicated to ME/CFS and it would be very good to share your vídeo with subtitles.

Pretty good question, my CMV titers are high, like your s, altough my EBV titers are normal. Dr Lerner did some heart biopsies in patients like us and found viral particles in the heart. He studied the patients with 24 hrs Holter and scintilography before performing the biopsies and found T wave...

It seems like good news. Real world patients experience.

Well, I didn't realize my name was there in the file E.coli : I agree with your observation but in the test coments the lab mentions low E.coli No, that's my first test Yes, there is a Very good nutritionist overseeing my gut issues.

Test result in PDF

The test shows diminished numbers of total microorganisms Low E. coli Low bífido, bacteroides Increased numbers of Candida My IgG food test also showed positive antibodies against Candida Although Candida can be found in up to 70% of healthy persons, its presence concomitant with dysbiosis may...

Hi , I´m posting the results of my gut microbiome test. Some observations: - I have been treating my gut for 6 months, so this test doesn´t reflect how my gut was before, I know it was worse because I had more symptoms before - Diet : low carb, gluten free, no cereals . -...

Yes!

Hi folks, I'm planning to travel to USA to see some physician who has experience in treating patients with ME, probably in the first months of next year, the East Coast being the easiest place to go. Any sugestions of Doctors ? Susan Levine in NY or Nancy Klimas in Miami ? Anyone gere treating...

I mean around 37,5-38º C degrees

Yes, IBS symptoms were very proeminente during crashes/PEM. I knew I was getting better when my IBS symptoms started to fade away Nowadays I don´t feel them so strongly, low carb/gluten free/low lactose diet + probiotics helped a lot. Nonetheless, I´m still tired and still get PEM/crashes...

Thank you, as a medical oncologist , I do agree with you in many aspects regarding guidelines, common sense and treating real life patients . Bad quality data is worse than no data, it´s like navigating using a fake road map. I tried a course of prednisone, 60 mg/day, with no improvment at all...

Very good explanation @Jonathan Edwards ! While discussing this subject elsewhere, you mentioned that some patients show up at reumathology clinic with a positiva ANA and fatigue but not with a specific disease or diagnosis. Can you expand your thoughts on this subject?

So I was talking with my infectologist and I mentioned auto immunity and she said " You don´t have na auto immune disease" OK, It´s not been proved that ME is auto imune but at the same time some patients do have high auto antibody titers . Probably they are not responsible for the symptoms but...

Kefir is not a bacteria but a colony of bacteria and some yeasts, and its composition changes around the world. It helped with my gut issues too, but it had a limited time during which it helped with my ME symptoms. I have felt the same with many other probiotics, they improve my symptoms for a...