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  1. J

    The Current State of Knowledge on Baggio–Yoshinari Syndrome (Brazilian Lyme Disease-like Illness):..., 2022, Yoshinari et al

    Hi, I got a positive response from the university lab, I´ll collect the blood sample and send them.
  2. J

    The Current State of Knowledge on Baggio–Yoshinari Syndrome (Brazilian Lyme Disease-like Illness):..., 2022, Yoshinari et al

    Such a coincidence! last week I was talking to a fellow neurologist who , upon reviewing my symptoms, told me that I should have a blood test for BY syndrome. I had never heard about this syndrome, so now it´s a good time to improve my knowledge. It seems that ther is not a comercial lab test...
  3. J

    Investigating Fatigue and Exercise Intolerance in a University Immunology Clinic, 2020, Ambrus et al

    I agree, I think the authors did a in depth study of fatigue and exercise intolerance , another positive points are the number of patients and the time span of the sudy. I have "atypical" ME, meaning that I had some similar, less intense symptoms such as muscle pain and ftigue following...
  4. J

    Event: Grand Rounds: Pathophysiology of Exercise Intolerance in Chronic Fatigue Syndrome Event Date: May 5th, 2020 David Systrom, MD

    The description of the 1975 outbreak is very interesting, he describes very well many symptoms that most of us have.
  5. J

    Why do we crash so quick when upright/sitting?

    I feel the same about sitting for a long rtime. i´ve discovered that if I take short breaks, like going for a short walk ( 2-3 MINUTES),I feel better.
  6. J

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    What´s CTD?
  7. J

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Very interesting information, in both studies the patients had objective neurological signs and symptoms, my question is, could these findings be generalized to a broader group without these signs and symptoms?
  8. J

    Skeletal Muscle Dysfunction. The Harvard ME/CFS Collaboration at Harvard-Affiliated Hospitals

    I think there is a group of Italians who have been studying the muscle in patientes with ME. It seems thet this was a very promisisng field of research a few decades ago but somehow the interest faded away
  9. J

    Published comments on article: Komaroff, Advances in Understanding the Pathophysiology of ME/CFS

    Merged thread In the comment section in JAMA´s recent paper by Dr. Komaroff there is a very intriguing letter from a retired pysician. He says he encountered three patients who had a remission from ME after serious illnes or physycal trauma: -peritonitis -Broken arm -Severe burning of the hand...
  10. J

    K Pressin: new treatment for ME CFS(?) - video Dr Derek Enlander (25 June 2019)

    As some people here know, I´m a pwME and a medical oncologist. After getting sick in the winter of 2015, I started to dig in the world of a unknown illness. One of the things the rang my alarms was the "X Doctor´s protocol" phenomenon. So I totally agree with Jonathan Edwards assesment of this...
  11. J

    Persistent Influenza A and Post-Viral Syndrome is keeping the 2x World Champ on the sidelines - March 2019

    She had na Influenza like infection...i do not know but it´s na interesting possibility
  12. J

    Persistent Influenza A and Post-Viral Syndrome is keeping the 2x World Champ on the sidelines - March 2019

    Another surfer, like me, goes down with this disease
  13. J

    Do you get post-exertional malaise from being outdoors?

    No.
  14. J

    Myalgic encephalomyelitis or chronic fatigue syndrome: how could the illness develop?(2019) - G.Morris,Maes,Berk,Puri

    Would you care to elaborate a little bit?
  15. J

    Anyone experience a numb feeling between toes on the sole side of feet?

    I do, exactly the way you describe it. It only appears when I´m having a crash. Weirdo
  16. J

    Recognizing leaky gut as a trans-diagnostic target for neuro-immune disorders using clinical chemistry & molecular immunology assays, 2018, Simeonova

    Could you find the full paper?
  17. J

    Brain glial activation in fibromyalgia – A multi-site positron emission tomography investigation (2018) Albrecht et al.

    Merged thread https://www.sciencedirect.com/science/article/pii/S0889159118302423?via=ihub#b0175 Very interesting article about neuroinflamation in FM, using PET-MRI with a tracer for glial activation. I think it has lots of interesting information regarding LDN, Duloxetine and how to asses...
  18. J

    Merryn Crofts - media and inquest

    My two cents here: although her findings might not explain all her (ours)symptoms, they are one more piece of information in this puzzle called ME. We have PET data from Japan showing brain inflamation, Liquor exams showing altered cytokines compared to controls and the clinical findings of...
  19. J

    Myalgia, amitriptyline and alternatives

    I have myalgia too and duloxetin helped a lot , 60mg/day , with minimum side effects .
  20. J

    Onset patterns of chronic fatigue syndrome and myalgic encephalomyelitis (2018) Evans & Jason

    I got sick in the middle of 2015, at that time I was feeling super healthy and I was very happy with my routine of surfing/swimming, yoga. Also, I had stopped working during weekends a few months before. One day, as soon as I got into the swimming pool , I felt a kind of a strange tiredness...
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