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On Dec 29th, I had my first appointment at the Stanford PACS (post acute Covid syndrome) and ME/CFS clinic, and even though I saw a young PA rather than the doctor (Hector Bonilla) who heads the clinic, I was very impressed. My intake appointment with the PA and an Argentinian doctor doing a...

Thanks, Jonathan. Definitely, in my own experience, fatigue comes along with inflammation, though my fatigue long ago with severe joint inflammation was nothing like the fatigue I've experienced for the past 28 years. In childhood, I would need naps and would go to bed early, but I didn't have...

Thanks, Hutan. I did check out the LIFT thread--quite a fun read, with everyone's wry remarks. :) I'm saddened (but not surprised, given my experience with the medical field in the US, at least) that CBT is still touted as an effective treatment for ME, or for RA, or for any non-psychiatric...

This is interesting, Jonathan, especially in relation to my experience with RA. Do you know of studies for other biologics than infliximab that show substantial fatigue improvement? I first went on etanercept (one of the first biologics for RA--couldn't do infliximab because it's given by...

Thanks, @Hutan @Trish @DokaGirl @Jonathan Edwards for giving me more information about Cort and also links to research and other relevant threads on this site. You all are incredibly helpful. And thanks to whomever renamed and moved this post to the appropriate place. When I've recovered from...

So, as someone Dxed with both juv-onset rheumatoid arthritis (now called juvenile idiopathic arthritis) and now ME, I was looking into something and came across this: Is the Exercise Intolerance in Rheumatoid Arthritis and ME/CFS Similar...

I don't have severe ME (I'm not always bedridden), but I have had many surgeries over the years, and I do feel that with each successive surgery, my overall fatigue gets worse and/or the surgery takes longer to recover from, especially if I have general. My last surgery (shoulder replacement in...

Thanks for clarifying that for me, Ravn. I hope to spend more time on this site in the next few months and get more up to speed about current research and also the history of (and sadly continuing) malpractice concerning ME.

I fear I am confused and probably woefully behind current science and consensus (among those who are legitimately studying ME) about PEM. I thought it was the one symptom/characteristic that was unique to ME and therefore an important diagnostic criteria. I take it this is not the case? Please...

Sorry for my earlier post. Will be more careful henceforth!

OK, someone mentioned CDC in a post in a thread I started, and I just assumed they meant the Center for Disease Controls, in the US!